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In an email conversation I had last week with someone who also has Dissociative Identity Disorder, the issue of hospitalization came up. I was impressed by this person's pro-active perspective. He appeared to accept the fact that inpatient stays are sometimes a part of the recovery process. Historically, my attitude has been much different. But I've decided his forward-thinking approach is healthier.
The fear's on different floors, locked in boxes, scattered in the places, worn out spaces I don't go. And if that's true, if it's everywhere and nowhere and exactly right here, where I don't want to look - then it's probably a big thing. Bigger than me. Maybe bigger than I should mess with: But I want to understand. Don't you?
Let me just come right out and say it: psychiatric medications suck. They just do. Waking up every morning with your first thought to choking down brightly-colored circles, ovals and squares is a bad way to start the day. Similarly, having your last act at night be downing medication to induce what used to be the natural process of sleep is equally unfortunate. But psychiatric medications are a reality for people with a mental illness. They are important. In fact, for many of us, without them we would have no chance at a life at all. So if we admit we hate them, but admit we have to take them, how does one manage to stay on psychiatric medications?
If you have Dissociative Identity Disorder you've probably been instructed at least once to create a map of your system. A system map, I've been told, is essentially a recording on paper of alters' names, ages, and roles - arranged according to where they are in relationship to each other. I've never successfully completed one. If that were the only definition of a system map, I likely never would.
I posted this on my personal blog on 11/09/06. Bob had been 5 only a few short weeks. We were deep in custody litigation and still 18 months away from a real diagnosis. As you can tell from these paragraphs, I was nearing the end of my rope.
What's it like, keeping the secrets of trauma and PTSD? I have so much to tell you, and I can't say a word. The trauma's tucked away, a dirty little secret that you keep. Maybe you try to tell a friend, therapist, lover. Maybe they get it, maybe they don't. But oh, how you want them to get it. You want their understanding words. And you want to scream, cry, run - from the fear and the pain and the sinking feeling of waking up each day and not being quite sure if it'll stay today, today. But you don't, you don't do much any of that. Most of the time you . . . survive. Trauma and PTSD make keeping secrets easier, but surviving increasingly difficult.
Why would a person purposefully starve, even to the point of death? "There is something very seductive about not eating very much, thinking that those around you are weak and have to eat," says Angela Lackey, our guest on the HealthyPlace Mental Health TV Show speaking about her experience with anorexia nervosa. "It makes you feel strong and special; you don't think about the fact that you can die from anorexia and that many people do die from anorexia."
Last night I met my brother’s new girlfriend for the first time. My parents, my husband and I were all excited that he found someone, (someone nice we all hoped). Well his new girlfriend didn’t disappoint and gave a pretty good first impression. I remember thinking that I didn’t envy being in her position – being the new kid on the block. It’s like high school all over again with the nervous butterflies and worries about whether people will like you, all while trying to show the best possible ‘you’ you can.
As any married (or divorced) person will attest, marriage is hard work. Adding a child to the mix multiplies the hard work exponentially. Add a child with a psychiatric illness - let the rollercoaster ride begin.
I had a VNS implanted about three years ago. The surgery involved two incisions, one under the left arm and one on the left lower front of my neck. My neurosurgeon promised a scar between 1-3 inches but it’s probably closer to four. Of course, I would much rather he get the surgery right and have a bigger scar than the other way around. Someone messes up your vagus nerve and you know about it, pretty much forever.

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Comments

Elizabeth Caudy
Hi, boo-- Thanks for your comment. I am 100% certain I have schizoaffective disorder, bipolar type. I've been diagnosed with this for decades. Also, you're right, gaining weight isn't the end of the world, and I work very hard to unlearn my fat phobia. Being a feminist helps with that. Lastly, I am not ableist. Elizabeth.
Pam
Thank you for this. If it helps my daughter I feel blessed. Thank you for sharing your emotions thru poetry.
Mike
Our daughter is 34 and about 1 year ago, something triggered her schizophrenia. She has withdrawn from everyone in her family and most of the world. She has blocked anyone on her phone that she thinks is a threat. Now; not paying her rent or bills and has shut out the landlord who is a friend and wants to help but with no luck. Now they have no choice put to evict her.
Where do we go from here? Most of the family thinks just to let her hit bottom and then if she reaches out to help any we can. Some want to just keep paying her bills and just let her sit in the house with no responsibilities. Never been on medication and impossible to get to her when she refuses to talk to ANYONE.
Help.
Bob
I would love your advice. I had been texting someone I met on a dating app, we moved to instagram and talked all day everyday for 2 weeks, she told me about having Bipolar Disorder. When I shared some of my struggles she would reply in the sweetest, understanding ways. We had really good, deep talks and started talking about meeting up. I liked her a lot, I feel like we really connected.

On the day we agreed to videochat to make things less awkward IRL she woke up with a migraine so we rescheduled to the day after, I made sure to assure her that it was okay and to take her time. Later that day, in the late evening we had a nice chat but suddenly she stopped replying, even though nothing had happened. The day after I texted her good morning and said I hope she was feeling a little better. she wouldn't open my texts.

A couple days after I sent her a longer text saying that even though I had only known her for a short time I care a lot for her and would like to know how she are doing, telling her I'm there for her, assuring her I'm not going anywhere even though things might not be very easy. She wouldn't open it.

A week later I sent a text saying not to feel bad about not answering and that I will be there when she is able to answer again. It's been two weeks since this and she still hasn't opened my texts. She hasn't been active at all.

I don't know what else I can do. I assumed she might have fallen into a depression. I have tried to just not think about it anymore, and I haven't that much but when I do it sort of kills me inside...
boo
its because it's probably not schizoaffective or bipolar, it's likely autism and meds are making things worse bc its something to adjust to not "fix". also gaining weight isn't the end of the world, try unlearning your fat phobia and ableism.