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Surviving ED

Dealing with weight changes in eating disorder recovery is tough. I remember standing in the dressing room at the mall, staring at myself in the mirror. Tears slid quietly down my face so no one would hear, or ask if I was okay, or if something was wrong. How do you explain that your body doesn’t feel like it belongs to you? How do you tell them that your body used to be thin and clean but now bulges where it shouldn’t, collects and pockets, and juts out towards the walls, taking up space? How do you explain this when they think you look fine, good even, while the inside of your head is screeching, “You fat, disgusting pig?" You may want to read these tips about how to deal with weight changes in eating disorder recovery.
Have you considered a simple mantra for eating disorder recovery? Eating disorder recovery can feel like a battle -- because it is. We choose to go against the destructive voice that was once our friend. We choose to sit with uncomfortable feelings and emotions, and not reach for our easy coping tool. We choose to live in our bodies as they shift and change and as they learn to regulate and be without the disorder. Some days it’s tough, but we have to keep in mind what we’re fighting for. We have to keep in mind our end goal. Having an eating disorder recovery mantra can help (Mantras and Recovery: Mind Over What’s The Matter).
When you have an eating disorder, you need to know what to tell an eating disorder treatment decision-maker. After all, having an eating disorder sucks and being worried about affording, or being denied eating disorder treatment, adds to the suckiness. During my stay at an inpatient facility, one of the girls threw up blood, and still, her insurance kicked her out after 11 days. Another girl with anorexia was there before I arrived and stayed after my release. To insurance companies, people are words on a page. They don’t know us. Even if they saw a picture, they might think we’re fine when we’re not. What they don’t know, is that just because we don’t look like a skeleton, it doesn’t mean we’re not at risk of dying. Here's what eating disorder treatment decision-makers need to know.
Some of us believe eating disorder lies. A teacher of mine likes to say that we all have an 18-year internship. That internship teaches us the models from which we view the world. These models of relationship, love, family, connection, etc., are the ones we blindly replicate unless something intervenes. For thousands of us, something did, in the form of an eating disorder (anorexia, bulimia, or binge eating disorder). We can either be upset about that, or we can see it as a sign that something is awry. We have the opportunity to take a closer look at eating disorder lies, if we choose. 
Why would anyone resist eating disorder recovery? Wouldn't eating disorder recovery be better than an active eating disorder? Afterall, when we think about eating disorders, the terms laughing, cheerful, bright, glad, or content don’t make the list. For those of us who’ve been living with our disorder for a while, there’s a helplessness, hopelessness and self-doubt, which kicks us down the stairs of depression with an eating disorder. We’re not stupid. We know we’re missing out on life. Yet fear pokes us with a sharp stick taunting, “What if you never recover? You’ll get fat. You’ll spiral out of control.” Terror of the unknown keeps us frozen in place, or moving with icy limbs. There’s a simple reason we resist eating disorder recovery. Once we hear it, eating disorder recovery won’t be the same.
Aloha. I’m Z Zoccolante, an author, actress, fairytale dreamer, born and raised on the island of Oahu, Hawaii. I’m excited to be joining the writing team on Surviving ED. My eating disordered past began with anorexia the summer I was 15, and shifted to bulimia soon after. Anorexia brought crippling anxiety, while bulimia sunk me into depression. On the outside I smiled, but for 11 years the voice of my eating disorder ruled my internal world like a vicious dictator. Although I wanted to be free and happy, I was terrified that getting help meant getting fat. Through recovery I realized that the eating disorder had me believing lies. Today, I live recovered from all eating disordered thoughts and patterns, and food is a non-issue. I fully believe complete eating disorder recovery is possible. I know the recovery journey because I’ve battled it, on my terms, and emerged on the other side. I’m fully recovered and I’m committed to helping others fully recover and get their lives back.
I’ll be honest, when I was faced with buying a new phone a few months ago, a major factor in my decision was the selection of phone apps available for eating disorder recovery. I’d previously had a Windows phone, which offered very little in the way of available apps of any kind, much less for eating disorder recovery. So I finally joined the rest of the world and bought an iPhone. I’ve spent the last month or so downloading different eating disorder recovery apps and trying them out – here’s what I have found.
There are a lot of things I wish insurance companies knew about eating disorders, but the reality is, the people who are deciding whether or not to pay for our eating disorder treatment are not always our doctors. They can be case managers, or people whose first priority is to make the company money. If the insurance company can reasonably deny your claim, they will. And this makes me unbelievably angry. Here's what I wish insurance companies knew about eating disorders.
I had been in outpatient therapy for six months. I was seeing a dietitian. I was made to attend an eating disorder support group. Even given all those interventions, if you asked me, I didn’t have an eating disorder. I was a healthy eater who maybe had a few “funny” things around food. It's hard to tell the difference between a diet and an eating disorder for some.
National Eating Disorders Week 2015 officially runs from February 22-28. I think that sometimes it is easy to blow this week off every year, because the reality is that we are at a point (at least in the United States), where most people are fairly "aware" of eating disorders. For the most part, people are familiar with anorexia, bulimia, or binge eating and may even know someone who suffers but we still need Eating Disorders Awareness Week.