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Eating Disorder Stigma

I believe trauma is often a repercussion of eating disorder treatment. Of course, clinical interventions are helpful, beneficial, and even crucial parts of healing, but they can still be traumatic nonetheless. This might sound like an oxymoron, so let me explain the possible trauma of treatment.
Each year, as the calendar flips to November, I'm hit with a reminder of how complex the holiday season feels in eating disorder recovery. Of course, that's not unique to those with a history of eating disorders. This time of year can be overwhelming for anyone. In 2021, three out of five surveyed Americans felt their mental health worsen over the holidays, with 60 percent noticing a rise in anxiety and 52 percent noticing a rise in depression. Now couple all that with eating disorder stressors or behaviors, and this hectic season can become even more fraught. So with the 2022 festivities just around the corner, let's acknowledge it: The holidays are complex in eating disorder recovery—and that is alright. 
Terminal uniqueness is a concept I first learned about in eating disorder residential treatment. At the time, my restless, irritable teenage brain had no interest in the phrase. But over the years since, I've come to realize that terminal uniqueness is a common barrier to eating disorder recovery. In fact, it's not a unique or rare phenomenon at all—ironically enough. So what does terminal uniqueness mean, and how can it affect recovery? Let's unpack this further.
Suicide prevalence in the eating disorder community is a serious concern. Eating disorders are some of the most lethal forms of mental illness—in the United States alone, one person dies every 52 minutes as a result of eating disorder complications. But this high mortality rate is not just a reflection of the various health risks that eating disorders cause. Suicide accounts for many of those deaths as well. In fact, the prevalence of suicide attempts is a tragically common trend among those who suffer from eating disorder behaviors. (Note: This post contains a trigger warning.)
The National Eating Disorders Association runs an annual social media campaign each June called #NEDAPride. I just learned of its existence, but I love it already. As someone who is both queer and in eating disorder recovery, this combination feels so poignant to me. 
I used to subscribe to the toxic positivity message. I wanted to believe that if I could maintain a persona of relentless confidence, enthusiasm, resilience, and optimism, then I would eventually outdistance the pain of my eating disorder.
Disclosing an eating disorder can be uncomfortable—even downright scary. In fact, research shows the prevalence of those who suffer from eating disorders is vastly underrepresented. A 2019 estimate from the Global Burden of Diseases reveals that as many as 41.9 million eating disorder cases were unreported over the course of just one year.
Sometimes—not too often, but occasionally—I stand in front of the full-length mirror on my bathroom wall and ask the reflection staring back at me, "Will I ever learn to love all the parts of my own body?" This can be a complicated question for someone with an eating disorder history, and as of right now, I do not have a clear, definitive answer. 
I am an identical twin. For most of my childhood, I was viewed as one-half of a package deal. In fact, my sister and I resemble each other so strongly that, as small children, my mom painted our toenails two contrasting colors just to tell us apart. We were known as The Twins, a source of fascination to those around us. I rarely encountered other sets of identical twins in those formative years—until my first experience at a residential eating disorder treatment facility. Twins were not uncommon there, which has me wondering: Is there a connection between eating disorders and twin dynamics?
When you enter the process of eating disorder recovery, one of the most intrusive—not to mention, persuasive—lies you might have to wrestle with is the belief that you're a burden. The combination of shame and stigma, which often underpins an eating disorder and many other forms of mental illness, can leave you feeling like just too much for those around you to tolerate. But as difficult as it can be to tune out this message, don't listen to the eating disorder voice: You are not a burden. In fact, you are worth claiming space in this world.