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Eating Disorder Stigma

When I took over this eating disorder blog, I did so with two purposes in mind. First, to offer support to those who are also in recovery from their own eating disorders and educate them on how to make their recovery stronger. Second, to help the friends and family of those with eating disorders better understand what their loved one is going through. I think to this point, I have done a decent job on the first purpose. However, my own fear of "too much" self-disclosure has kept me from accomplishing the second. To be honest, it's hard to put into words just what kind of hell living with an eating disorder is. Especially in the midst of it, when your head is spinning and words seem difficult to grasp. As a result, most of my writings from my worst days of my eating disorder seem to ramble and go off on tangents and almost always ended with the conclusion that I wasn't really sick, I was just crazy and I should just kill myself for being such an attention-seeker.
Or, “What Lance Armstrong Has to Do With My Eating Disorder Recovery.” I was listening to NPR last weekend and they were, of course, talking about the Lance Armstrong interviews with Oprah, in which he admits to doping during the time which he won his seven Tour de France titles. (I wish I could find the link to this report, but after many hours of searching the NPR archives I couldn’t find it.) At one point during the segment, they quoted a psychologist whose point, in short, was that Lance Armstrong probably thought he was doing the best thing by lying about doping.
I was diagnosed with anorexia nervosa when I was forty-two, although I've wondered if I didn't have at least vestiges of the disorder when I was a young adult. For a long time, I tried hard to hide my condition or at least deflect concern about me onto others . . . anyone, as long as people didn't guess my secret: that I was anorexic. I should have saved myself the trouble, because the majority people I knew figured out what was wrong with me long before I would even admit it. I often wondered what would have happened if either: a. I had talked to someone when I first began restricting at the age of eighteen, or b. If I had chose to keep silent about my eating disorder. I know — two different scenarios.
National Eating Disorders Awareness Week 2012 is this week. This year's theme is "Everybody Knows Somebody." According to the National Eating Disorders Association, ten million women and up to one million men have anorexia or bulimia, and millions more struggle with binge eating disorder. That means that you most likely know somebody with an eating disorder.
I have run into many people who just don't understand eating disorders since I developed anorexia in my early forties. Many people would ask me, "Why don't you just eat?" They did not realize I was terrified to eat. In this video, I talk about some common misconceptions about eating disorders and what we can do to educate people.
Recently I was invited to write on my personal blog about weight stigma and what does it mean to me as part of fellow blogger and ED activist Voice in Recovery's Weight Stigma Blog Carnival. (ViR is HealthyPlace blogger Kendra Sebelius, author of Debunking Addiction.) I wanted to continue the conversation about weight stigma on Surviving ED. I was very nervous about writing "Weight(ing) For Change: Why Weight Stigma Impacts Us All." Why? Because it forced me to face my own prejudices and fears towards people who are overweight or obese, and about weight in general.
Eating disorders and loneliness. It is not something we speak or write about often. It is painful to think about being lonely. But I believe people with eating disorders are often very lonely. It is the nature of these illnesses. But it doesn't have to be  this way. I would like to shine some light into these dark corners of loneliness, and perhaps help other people with eating disorders feel less alone.
PHP IOP NG Tube AN TPN IP AMA . . . The first time I was hospitalized for anorexia nervosa was in June 2008. I left after 24 hours — AMA. The second time I was hospitalized for treatment my doctor informed me I would need a TPN. I was totally clueless about the acronyms and terms. It can feel like you are swimming in a vast sea of alphabet soup when you first enter the world of eating disorders treatment.
National Eating Disorders Awareness Week 2011 ends Saturday, Feb. 26. Each year as it draws to a close, I always think about what I and others have gained from the presentations, articles, and other activities devoted to helping people understand eating disorders. The prevailing message each year is one of hope and belief that eating disorders do not have to rule anyone's life.