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Eating Disorder Stigma

National Eating Disorders Week 2015 officially runs from February 22-28. I think that sometimes it is easy to blow this week off every year, because the reality is that we are at a point (at least in the United States), where most people are fairly "aware" of eating disorders. For the most part, people are familiar with anorexia, bulimia, or binge eating and may even know someone who suffers but we still need Eating Disorders Awareness Week.
I often say, and write, that my eating disorder never defined me, not its diagnosis, nor the stigma attached to suffering through the illness. Even today, I'm open about the fact that I deal with food anxiety and no, I'm not ashamed of that either.
In the context of peer support, I'm often asked about what eating disorder recovery means to me and how I 'got' here. Basically, I'm asked to sort of summarize the most important thoughts I went through while battling the disease; or now, looking back on it. I'm happy to share with you readers some of my most personal truths discovered along the way; things I know for sure about myself and about what my recovery was like, and also in regards to how I feel about my history with bulimia.
On Tuesday, I started studies for my Master's degree.  (In expressive arts therapy, if you were wondering.)  And around the country, schools and universities are returning to session and one of the most common "get-to-know-you" questions is "What did you do this summer?" If you were lucky enough to go to an eating disorder treatment center during the summer months, or during a school break, you might be able to make something up. But what if you're in a career and just had to take off three or six months for eating disorder treatment? How do you explain that?
Admitting I had a problem was my first step to bulimia recovery. With time, wisdom, and experience, I’ve come to terms with my diagnosis and accepted that bulimia did not define me. My acceptance of the diagnosis was a starting point, a breath of fresh air, much like walking out of a room in college when you decide this party’s over, I’m heading home. As uncomfortable as that experience was, being diagnosed, for me, felt like coming home.
Warning: This specific article is graphic and may be triggering.) My bulimia was a pallet of colors. As dreamy as that could sound, this wasn’t as innocent as a coloring book, rather colors were my guide.
As I mentioned in my post during National Eating Disorders Awareness Week, over half of eating disorders in the United States are diagnosed as "Eating Disorder - Not Otherwise Specified" or ED-NOS. It's a tricky thing to pin down, ED-NOS is. The manifestation of this eating disorder is as varied as its many sufferers and carries a stigma and set of problems all its own. So if I'm diagnosed with ED-NOS - what the heck does that even mean? What does it mean for my recovery? What does it mean for my access to eating disorder treatment?
Yeah, okay. It's National Eating Disorders Awareness Week. What's there to be "aware" of? We all know that eating disorders are for vain, pretentious teenage girls. It's just a stage. They'll get over it. And it's not like being "too thin" is going to kill you. That's what everyone believes, right? Everybody has heard of eating disorders at this point, so why are we taking a week to specifically "make people aware"?
This week, February 24-March 2, is National Eating Disorders Awareness Week in the U.S. In this video, I share the ideas behind NEDA Week, as well as how the stigma of eating disorders relates to the Stand Up for Mental Health Campaign on HealthyPlace.com.
I've been listening to some audio teachings by Brene' Brown, a leading researcher on the subject of shame. Shame - that feeling of not being "enough," not being worthy - is something that we with eating disorders are all too familiar with. Brene' says early on, "If you don't claim shame, shame will claim you." How many of our eating disorders and addictions began out of a place of shame? How many of us have allowed our shame to control our lives and for how long?