Schizophrenia and Parenting: Step In or Let Go?

Hi,
I am a mother to a 23 year old son who has this mental illness as well. He has been in a home for men for almost 2 years now and has been put on medication for the last 6 months....finally. I can now have a somewhat normal conversation with him. I love my son dearly and have gone through so many emotions with this illness and with him. He wants to come home but honestly I am afraid of him. I also have 2 young girls at home still ages 8 and 6 and I do not want any harm to come to them. I feel so guilty about this. I just don't know what to do.
The shelter my son is in has put him on a waiting list for an apartment of his own. I want the best for my son but I just don't know anymore what the right thing to do is anymore.

My brother is 31 and he was diagnosed first as bipolar with paranoid tendencies and then it was changed to schizophrenia 6 years ago and after some trial and error, he was taking Zyprexa and Trazadone which took care of the psychosis but he was not the same, was like a zombie a lot of the time, slept more often than not, gained a lot of weight and started getting jaundiced from the liver damage caused by Zyprexa. He stopped the medication 3 years ago and has been fine ever since...until last week. He's been under a lot of stress lately and lost some sleep and now he's crazy as ever and getting worse every day.
He's highly intelligent (IQ is over 145) and I think that makes it worse because he has so much knowledge in his head. We are not very religious and haven't gone to church much so I don't know where he gets all this religious information but he knows so many specific stories from the Bible and he "talks" to God on the "phone" (the phone can be a sock or a water bottle.) Today he said that he is just walking with his brother Micheal the arch angel. He was also displaying symptoms of OCD...picking something up and moving it around in weird circles and putting it back down. Or he'd count...he counted to 5 most of the time (even if there were more or less than 5 of what he was counting) and he counted a picture and said "1.2.3.4.5...oh shit, we're f$&ked." I'm thinking, if you only knew how f#@ked we are. He said "War is coming." I didn't really know what to say, I said, "I don't think so, it's not on the news." He said #1 is God #2 is Hell and #3 is this and held up a tiny piece of sandwich meat and then threw it outside. He's threatened to kill himself, and both our parents. He's always lived at home and usually doesn't go out at all. In the past week he's been all over town, lost all his clothing and some how got soaked and his ears are full of water (the doctor looked) he was complaining of popping in his ears but I thought it was just the disease. He's complaining of all kinds of physical problems that aren't there...the water in the ears just so happened to be real.
Anyway it's really bad and NO ONE will help us AT ALL! We've taken him to both mental health institutes, the ER and the police department and no one will help him. The first place said he did not meet criteria, even though he's attacked my mom and threatened to kill himself, the police said he'd have to do it again before they'd help (my mom waited more than 72 hours to report the attack), the ER was useless other than identifying the water in his ears and telling us to buy some sinus pills for it, they did give us a referral to the other mental health facility in town. We took him there and the guy who was evaluating him actually said this was beyond his scope and went to talk to his superior. He came back and told me the same thing, he didn't meet criteria, even though my brother actually admitted (he hadn't before) that he had suicidal thoughts there. The guy said he'd have to hurt himself or one of us before they can take him in and that he has to be stabilized on medication BEFORE he can be inpatient. That is so backwards to me! The whole point of inpatient IS TO GET THEM STABILIZED ON MEDICATION. I told him this and asked him didn't that sound backward and he didn't answer me. I could tell he knew he was doing the wrong thing but his hands were tied.
He finally told me that they would call us for an outpatient appointment to get some medication. He insinuated we would get an appointment within a week. That was yesterday afternoon and no one called yesterday. I called again today and spoke with the office manager who was just as uncaring as everyone else I've spoken with. I don't know how these people sleep at night. She said that their new patient appointments are an hour long so they have to see when they can see him. I told her how the guy said he'd be in within a week and she told me that won't happen, the doctor is not even going to be there next week! So if I cannot get them to help him tomorrow or Friday, it's going to be 2 weeks at least. This should be illegal. He has medicaid so they will get their money, I don't know what the hold up is. I read about NAMI in the comments and I am calling the local representative tomorrow as well as the place that diagnosed him 6 years ago (it's in another state) to see what they suggest.
Anyone with any suggestions on this barbaric inhumane system I'm dealing with, I'd really love to hear them. They had my brother sign a paper "promising" he wouldn't kill himself. I said "Oh this is so you don't get sued when he does?" The guy just sat there. Makes me want to get violent and I am not a violent person. I love my brother and he desperately needs HELP!

Randye,
Thank you for your response, you do a good job of replying to everyone here and I think that's fantastic. I did see on nami.org there is a family meeting on Wednesday nights at 6:30 pm. It was past 6:30 when I found it or I would've gone, it's at the place where we are currently awaiting an appointment. I don't live with my brother, he lives with my parents, but they are both very sick and so I am trying to do most of the doctor stuff because I know they are worn out just from being with him all the time. I can only be there about 6 hours a day. I am going to do everything I can in these next 2 days to get him some help.

The books you suggested sound really good and "Defying Mental Illness" seems like it would be most helpful in my situation right now, wish I had a Kindle! Thanks for the links.

Hi, I just read all these comments and Mandys' comments have made me feel like I am on the verge of tears. I know someone just like this. He really wants a girlfriend, he is lonely, it breaks my heart. He is so isolated. I keep thinking he is going to get better, and I keep wondering how the hell he has gotten to the stage where he is at. I can't even say who he is coz i am under so much pressure to keep my mouth shut and not tell anyone anything. I am finding this life so hard with someone i love so much being so off the planet and other people close to me with other serious issues. Sometimes i feel like joining them all and getting smashed and drunk and i am finding this whole carer caper too too much.

Rh Our son is 22 and his dad, I, and older brother are fighting this horrible illness. I, his mom, knew something other than drug usage was stealing our son from us. His dad and brother have recently accepted his schizophrenia as the culprit behind all the pain and bizarre situations the last 4 years. He will not take meds as of now. We are seeing a counselor at the psychiatry office to help us. Our son recently admitted to smoking pot a lot lately with "friends". I know from reading that the pot can trigger a psychotic episode. I have learned the signs to look for. Sure enough: broke phone, broke table, and visit to my home which results in having a friend scare him away. Soooo sad. I never dreamed i would have to not allow my own child in my home. Goes against laws of nature. But did have a good day with him few days later. I don't think he knows I was behind the friend making him leave. At this time my main concern is how to create boundaries for him to leave pot alone and to get on meds.

For 15 years I watched my husband struggle with depression, suicide attempts & paranoia. His diagnosis changed so many times.....bipolar, schizoaffective, etc. He's always been med compliant & it took a long time to find the right combo of meds.
We have four beautiful children together. He has his own business. He is extremely talented & intelligent. He has beat schizophrenia for now.
BUT our 8 year old son was just diagnosed with schizophrenia.....it was like being a death sentence. Wed taken him to the psychiatrist to be tested for ADD & excessive anxiety. We walked away with SCHIZOPHRENIA. Knowing its heredity, knowing his father mother aunt uncle ALL have this diagnosis STILL did not ever make me think that this would be his fate.
I wonder about my other kids....will they hallucinate, will they too long to end their tiny lives. Feeling overwhelmed & so depressed. We lost our possessions during hurricance sandy then lost our home a month later. We are staying with friends & technically homeless. They said his "break" occurred during the loss. He is hostile, threatens to kill his 5 & 6 year old brothers, says hurtful things to us & his older sister. Its like he's crawling out of his own skin....literally scratching it open.
Hate feeling that he feels so HOPELESS. Hate that my husband feels at fault. My HEART feels broken & my family feels like its falling apart. Idk what to do. Need stable housing.....LOST.

My son,almost 26 ,last month suffered a psychotic episode and was arrested walking in tennis court near family condo. He always has had social problems mostly attributed to Asperger' s Syndrome , or high functioning autism. His father was a young man I had a brief relationship with while in Israel years ago. We lost touch. I am older single parent of 3 and I have many people I know but no one to help. But this week I applied for SSA and Medicaid with 2 women who went out of their way to,do the paperwork with me in one visit. Most of the medical people have been so nice, except the clinic doctor who upset Mike with accusing voice" So how long have you have schizophrenia?" I answered "one month." Reading this helps much.

I have 4 sons and my youngest 26 yrs old son has been recently diagnosed as having Paranoid Schizophrenia, possibly caused by the death of his father when he was 18 years old. To cope with this fact, he took so many dangerous drugs and also two overdoses which I believe contributed to this illness today. Usually always a quiet boy he began to develop an obsessive personality disorder and became very violent and aggressive towards me in the family home, possibly from all the drugs he was taking. I became very ill myself and whilst he was in prison I was moved into a small safe flat after suffering a breakdown. The rest of my children had already moved out to be with there partners.
Since this time, he has been in a mental unit on two occasions and I have always been there to love and support him alongside his brothers. He is still under the care of the mental health team and has been put onto an anti- pyscotic medication to help ease his distressing symptoms. The truth is that I had to stop having contact with him because he began to drink alcohol and take drugs again and I felt afraid but his brothers continued keeping an eye on things, Since that time I once again have been quiet ill from worrying about him all the time. The mental health team are trying to find him somewhere else to live, but I feel such a failure as a mother and wonder if I should ask them to find a place for us both to live together again so that I can look after him. The truth is that he's began to take Heroine and I am just worried sick that I will loose him forever if I don't do something. We are all concerned, but the other boys have children at home and so can't take him in. Please can someone offer me some advice as to what I can do please. Thank you

I found this website in desperation looking for some support and advice and i'm so glad that I did. I am so heartbroken that my beautiful youngest 26 yrs old son has been diagnosed with Paranoid Schizophrenia. My other 3 sons live normal, healthy and happy lives, and it breaks my heart to know that this is happening. His father died when he was 18, which is when this illness began to take shape. Normally a quiet loving boy, he began to take drugs to cope with the pain of loosing his dad and took 2 massive overdoses. He developed an Obsessive Compulsive Disorder and eventually was put into prison for committing crimes. When he returned to live with me, all the other boys had moved out to be with partners. I began to feel very afraid of him especially with the paranoia that seemed to take him over. I had to move into a small flat whilst he was once again in prison, because I became very ill after he tried to hurt me, but this was only because he was ill. I have always stood by him and he was in a mental hospital twice quiet recently, but then he began to drink alcohol and so I wouldn't go near him because I was afraid. His brothers have been keeping an eye on things and the mental health team go to see him every week. He's finally taking the medication regularly, but he isn't a happy boy and neither am I. I feel as a mother that I have failed him and should be there to look after him. I am so distressed because he has recently been dabbling with Heroine. I am thinking about asking the Mental Health Team who are currently looking for him somewhere else more suitable to live to see if they can find somewhere for both of us. But the constant talking he does to someone or no-one is awful and drives me to feel that I just can't take it, but I don't want to loose him or fail him. Please can someone give me some advice. Thank you...

We have a 18 yr old with paranoid Schizophrenia diagnosed at 17 turning 18 .i always new something was different but the Dr's said it nothing or ADHD well i wish it was that and a dream to it has been going on 10 months it was hell should we believe the Dr ? but after seeing what we went through the voices ,paranoid stuff delusions it was sad it still is what parent wants there son to have this .he is on Invega for the last 5 months doing much better was on Seraquell stopped that not good up all night .takes valium but i must say i see my son doing better it 's ONE DAY AT A TIME ! because at any given moment it can change or just hoping being of age he doesn't want to stop his shot which has happened already .he trusts me be supportive and treasure everyday i also keep a journal everyday on him in case something goes wrong the DR s can read it .support groups are good N.A.M.I is good .we have a long road ahead of us lot s of prayers .oh don't forget for you to enjoy life as well get out and do something to it will take a toll on all who is involed .

I can relate to all of you very well. I too have a son and a daughter with schizophrenia. My brother had it and it was a nightmare for my parents, younger sister and I. This was back in the eighty and the medication was not as good as the ones they have today so my brother never got a chance to recover with meds. Out of 4 siblings, and 9 grandchildren both my children were diagnosed with schizophrenia. They were in the hospital every year at the same time. My son got hooked on all kinds of drugs and was in jail several times for petty larceny. It began with ADHD and it escalated to schizophrenia. He was living with a girlfriend and she overdosed. Sadly his father passed 1 year after his girlfriend. I had already met my new husband and moved in to my new apartment one year before his father passed. I knew my son was living with friends but I didn't know he was using drugs and drinking himself to death until it was almost too late. I pleaded with my new spouse to let him in the house until he got his life back and he finally agreed. I spent countless nights on my knees and then one friend recommended I take him to a deliverance church. He refused to go so I went and I let them pray for me and my family. One day the minister who is an evangelistic bishop of a church told me God could heal my son through me. I was there for both my children. My daughter came with me but she had to fight her way to church. She was paranoid and heard voices telling her ugly things about her and she had bad anxiety. I just told her to force herself to go and one day the bishop called her to the front for prayer and told her "no more" God is going to heal you. Well if you don't believe in miracles, you should because she has been improving and I thank God so much. My son is also improving and slowly coming out of his addictions. He has truly come a long way. They are still improving and I am still praying for they total recovery. The dose on their medications has dropped tremendously. My daughter could not be in crowds and now she has no problem taking the bus or subway. She feels safe in huge crowds and she rarely hears voices. I hope this helps. I was able to handle my life with them very well. I'm not saying that I didn't feel stress but I kept myself busy by attending college again and praying a lot. There is hope if you seek the help of God. The social workers and psychiatrist are also a great help but the problem with this diagnosis is that the diagnosis of paranoia makes it difficult for them to trust those professionals trying to help them.

I need help with my son, he is in jail , he has been getting in and out of jail, but he really is a good son , and here in alabama they don't care!! Please I need help

My daughter has had all of the follwoing diagnoses: Schizoaffective DO, Schizophrenia, Asperger Syndrome, Bipolar disorder. I am a Registered Nurse. Until my daughter became mentally ill, I practiced in the med-surg/tele area. Now I do psyc. nursing.
The doctors do not know what is wrong with my daughter (now 20 years old)! Her symptoms started in 2006, a few months after her biological father died very quickly from stomach cancer (2005). Of course, the symptoms worsened after got married to a retired army veteran, who suffers from PTSD himself.
I believe that antidepressants pushed her into her first psychotic break.
Does any one have a success story to share? My daugher has always been a very bright, intelligent girl. She is in college right now. This is her first 'on-campus' college experience and it has not gone very well so far. I want to help her succeed.
I need to hear a different kind of story--SUCCESS!
Joyce

My daughter has had all of the follwoing diagnoses: Schizoaffective DO, Schizophrenia, Asperger Syndrome, Bipolar disorder. I am a Registered Nurse. Until my daughter became mentally ill, I practiced in the med-surg/tele area. Now I do psyc. nursing.
The doctors do not know what is wrong with my daughter (now 20 years old)! Her symptoms started in 2006, a few months after her biological father died very quickly from stomach cancer (2005). Of course, the symptoms worsened after got married to a retired army veteran, who suffers from PTSD himself.
I believe that antidepressants pushed her into her first psychotic break.
Does any one have a success story to share? My daugher has always been a very bright, intelligent girl. She is in college right now. This is her first 'on-campus' college experience and it has not gone very well so far. I want to help her succeed.

I can relate to all of these postings. We have a 24 yr old son with schizophrenia, and our hearts break every day. My husband had to quit his job to stay home with him. He was arrested last year and now with probation and restrictions and his illness, he needs someone around all the time. I can hardly get through each day. I am so glad to see this site, but so sad that there are so many of us. I wish we could get together - It is so lonely when you have no one who understands your struggles. If anyone is in the Milwaukee area, please let me know. I'll check the site often. I hope every day that my son will meet someone who can be a friend but it never happens. WE barely get through each day emotionally. And I worry so much about the future and his fate. He takes his meds, but that's only because of the arrest and probation, which unfortunately has been the only thing that helped us since the laws are so outdated and work against you and not in the patient's well being. I could write a book with all we've been through. Thank you for this site again!

@Randye - read your book, Ben Behind the Voices (well audio) and hard to keep from tearing up most times listening to it as I could relate more than you know.. many times on the plane listening to it. I am actually a fairly successful person (executive for fortune 500 company) who has 3 boys the youngest of which has diagnosed with Disorganized Sz... we have no history in our family and had no clue about the devastation of this disease. Our son had spinal menangitis as a baby and had a terrible TBI accident when he was 13, which I am convinced caused the Sz. It has taken such a toll on our family, our marriage and our life. I have turned to advocacy for MI as we need too as a society invest in finding a cure or better treatments for so many who suffer!!! I just found this page surfing the web tonight and just want to thank you for writing your book - it touched me. I hope and pray that Ben finds his peace and path in life as well as my son Chris.
God Bless all the parents of children impacted by mental illness... we are the tired, strong, fearless warriors who soldier on despite the challenges, thoughts of despair, and fear --- we continue to find hope in the midst of chaos and uncertainty... and we will never, ever give up or lose hope for the one's we love!

21 yr old son is in jail with immigration hold for being violent with me. Everybody expects me to get him out and take him home with me but my husband and I can't live with him. His brother is schizophrenic as well but taking meds. Tends to refuse meds though if the brother in jail tells him to stop. Son in jail is a bad influence on the stable son. I'm in Georgia and have repeatedly asked for long term medical help and nobody will help us. I contacted the probate judge about a 1013. Georgia has a 72 hr hold and they let patients go if they refuse meds. Checked on getting guardianship. If I did that I still couldn't legally force meds. He's been violent with us and still the court will not order mandatory shots. The politicians of this state need to change this. Or maybe they are medication refusing mentally ill too that think this is right. I'm so frustrated. There's nothing else I can do. I've lost my son. I think I have to just let him go and think about the son I have left and the daughter he's leaving behind. I've cried so much. My heart is broken. I can't sleep well at night. I have to constantly stay busy to not think about it so much. I'm exhausted, depressed, I feel guilty, scared, worried. I love him but don't know what to do. The mental health system of this country is non-existent. Maybe the government wants as many people possible to be insane...if not it sure looks that way. Because they aren't doing anything to fix people.

@Tsol...I too am in Ga and I feel your desperation. At present my son(24 dx: Schizo) is in the hospital here in Ga on a 72 hour hold taken in on a 1013 by police. I'm finding it is a viscous cycle and in Ga the system is design to protect the consumer and not the family. But, I am trusting God by leaning on his directions and loving my son despite and continuing to get education, help from DR's and social services. NAMI DeKalb Ga has been a great support.

HELLO MY NAME IS PAGE. I have a son 24, WHO has been diagnosed with Schizophrenia FOR 5 YRS NOW.
I FEEL EACH AND EVERY ONES PAIN AND THE STRUGGLES THAT THEY ARE GOING THROUGH
I'M THERE AS WELL I'M LOST I DON'T KNOW WHAT TO DO.
I want to get my son the best of care but that takes money so I'm lost as to what to do...as we all are.
MY SON NEVER REFUSEs TO TAKE HIS MEDS BUT IT SEEM AS THE MEDS ARE NOT DOING ANYTHING FOR HIM.
HE WAS TAKING INVEGA SHOTS BUT HE REFUSE THEM NOW BECAUSE HE DON'T LIKE THE WAY IT MAKES HIM FEEL>
SO I NEVER WOULD HAVE KNOWN WHETHER IT WAS RIGHT FOR HIM
I HAVE READ SO MANY STORIES AND EDUCATED MYSELF ON HIS ILLNESS SO MUCH THAT MY HEART REALlY GOES OUT TO SO MANY FAMILIES STRUGGLING AND THE PAIN THAT THEY FEEL
I HAVE BEEN SEARCHING FOR A REALLY GOOD DOCTOR BUT NEED SOMEONE'S HELP PLEASE IM CRYING OUT FOR THAT SUPPORT MY SON BEEN IN AND OUT OF JAIL.
HE SMOKES CIGARETTES AND MARIJUANA HEAVILY
I DON'T KNOW WHAT TO DO ANYMORE MY HEART IS SO HEAVY NOT JUST FOR MYSELF BUT FOR A LOT OF PARENTS OUT THERE THAT ARE GOING THROUGH THE SAME THING PLEASE SOMEONE REPLY TOE AND GIVE ME SOME SUPPORT AS TO WHAT TO DO PLEASE!!!

My oldest son (now 25) is schizophrenic and for 20 years it was the most heartbreaking situation as it was childhood onset now i am faced with the youngest son (21) in the military with onset symptoms of schizophrenia - i sent him off to the world to be free and live his own life without the escalated home life. I am simply at loss with the knowledge that the storm followed him. I am now 60 - exhausted, despondent and alone.

oh my god just reading this website a relative of mine seems to me to be experiencing similar symtons
two months ago he was such a bright passive positive intelligent young man then suddenly progressed in to someone I hardly know ....I am in shock after reading comments I am more shocked and I know it is a terrible thing to think but wonder if they would be better off dead than having to live such a painful life with doctors who are over
worked unstaffed and have no cure....it must be hell on earth for them and it is hell on earth to withness the decline of a loved one who assumes we are the enemy I have beaten cancer twice trying to keep my strength up but my life will never be the same after what I had to witness watch my loved decline into this state god love us all my life now is just tears and fears and my loved is missing for the last six days and do not know if they are dead or alive and wondering which one would be best for them in this condition

Reading this website helped me not feel so alone. My 21 year old son is schizophrenic and I do not know what to do. He has recently gone off his meds and I can not talk him into taking them. It is hard not knowing what to do. It is a wait and see what happens illness due to there is no guessing what they will do next. I just don't know any more.

Hello All,
Everyone here seems to have a child with schizophrenia, my situation is different its my mother. I have been the adult my whole life. I never got the chance to be the kid. I am 40 now and I am tired. I want my life; I am tired of worrying about her. I want to have a normal life; I want to be free. I know this sounds selfish, but I have bailed her out and set her up her life too many times. She is the most selfish person I know. All I want is for her to take her meds, and be happy. I have prayed and asked God to heal her. I have been a good daughter I'm not rich so I can't afford to place her some place nice. Group homes are awful, but no one can take living with her. I am at the end of my rope and I am about to give up. I know it sounds awful, but I can't keep going through this, I can't keep giving her my life its not fair and all of my family have distanced themselves away from me and her.

Hi Everyone here, I have read all these posts and am feeling so much sympathy for you all, and also for your children and parent. This is a very damaging disease to have and to live with, so destructive of lives and families. You all know it intimately and have so much good understanding of the day to day difficulties involved. As a M.H. counsellor, I can only offer my deep admiration for your strength and loving dedication to your relatives, and I know that what we want to achieve and what we actually can achieve are very different, so I will wish you more strength, and more love and more of God`s good help in your endeavours to find happiness within the dark clouds that are around you all. G.

My heart goes out to everyone who has commented. Our children have had the rug pulled from under their feet in many cases just when they were about to become independent of us. This throws up a lot of resentment as we worry about the possibility of having to look after them for the rest of their life.I must say though I would give my life tomorrow if it could be taken away from him.In the case of the one girl whose mother is schizophrenic I also feel for her as my own mother was ill. I let her down by leaving home at 19 so the I say to you that you have the right now to want your own life and I hope you get some support to do that. I have just had my 24 year old son sectioned under the UK Mental Health Act. He now resents me and sees me as one of the enemy in his delusions of persecution. He is taking meds but after one month there is still no change in his mental state. My belief in God has gone. I was never religious but had my own views about spirituality and life's ultimate purpose but this had taken it all away and I am struggling to find any purpose as my sons mind shrinks into an abyss of fear and paranoia.

My daughter who is now 29, was diagnosed with paranoid schizophrenia about 4 years ago and I can relate to these stories only too well. We both live in Texas, which is the worst funded state for the mentally ill. She has never been compliant with taking medication. Once she was court ordered to take the injection, Risperdal Consta every 2 weeks for 3 months, which helped her greatly and when I tried to get that court ordered medication for a year, I was unsuccessful because her psychiatrist would not sign the paperwork and it fell through. The judge here told me "if your daughter commits a felony, it would be much easier to get that years medication order from the court. Our jails and prisons are filling up with people with mental illness, though, at this point it is much cheaper to put them in jail than to get medical help for them. I have come to hate the term "immediate danger to self or others, which is what they, the mentally ill, must display before they are hospitalized. The sad thing is, that at that point of being an immediate danger, it is often too late for the patient and/or the victims of their breakdown. I have had 29 years with my daughter. How many years did the parents have with their children that were murdered at Newtown, Conneticut? Mental illness not only affects the mentally ill and their families but it affects so many others.

I am 42 years old. My mother has been a mental patient for about 30+ years. This illness drains our family. I can share so many stories but I will stick to the current situation. My mother is now what I call in her "other world". I feel like it is the result of half taking her medication and drug addiction. I have called so many agencies including her current Psychiatrist for help. No one is helping. The law is preventing us from getting my mother help. Everyone is telling me that she has to voluntariy go for treatment. The only way crisis can take her is if she is harming herself or others. Stupid. We are trying to prevent that from happening. All she needs is a place to rest and get her medication back in her system. This will never happen because she doesn't feel like she needs help. We are her enemy if we dare to mention the hospital. I'm trying to act normal, the emotional stress is overwhelming. Does anybody truly care about mental patients?

Hello I wrote last July on here about my.son Jake well he was on the invega shots for8 months then one shot of Abilify.then Jake didn't go anymore so for Sept, Oct,Nov, and Dec was good then relapse started then to the Dr.s again a different one she said bi polor put him on effexor didn't work then low dose Geodon he had to go back in hospital for two weeks put I Cymbalta,klonipin2mg and two 80 mg geodon then I took him to the first Dr that really knew him he upped the Geodon so it worked a little but for about a month now he is relapsing I called to see Iin case he needs to go back to hospital of s bed was available it's a roller coaster we are drained as his parent s we want a miracle as well as for everyone else going through this .you hear and read that antipsychotics are good or bad what is the truth do they really help them ? My son has voices he sees shadows the voice at times it's satan draws demonic pics a heart with horns coming out I of it ? Don't get me wrong he is smart to then the smiling thing odd his thought s are mixed to .so much we go through it hurts how.I wish this wasn't going on when I do look at my son I see him briefly then it's like I lose him then you for letting me.explain a little now just have to find the right drug he has tried Latuda,Serquell, invega,abilify,geodon haldol is terrible allergic to that makes him twitch .oh and N.A.M.I has been good .

I too live in Georgia,my son who turned 18 is schizophrenic and refuses too take his meds. He is on invega sustenna shot ,20 mg of ziprexa twice a day and depacoc 2 pills twice a day well he only want to take it once a day. I hope shot once a month helps but im worried he was in two different hospitals this month and I been praying for him every day. He is starting to show signs of paranoia again and he laughs at the voices. I talked to his therapist he wants me to put his med in his food. I am thinking about it since he doesnt want to take his right dose. Im watching him everyday to see how he does everyday. He went from taking ten mg to 40 a day of ziprexa. Im nervous csuse he not takung enough of his meds.

I can hardly get through reading all the comments, my heart goes out to all who have their pride and joy they've invested so much love and time with be diagnosed with schizophrenia. My son was 17 when he only started out controlling what he was eating, thinking he was eating more healthy, but it spun out of control and he refused to eat things that did not line up to religious rules. I took him to a Dr who had him do a blood and stool testing, with the stool testing sent to a top notch lab out of state. It returned saying he had 3 parasites, which the AMA said 2 were non-pathogenic. I did research like a crazy mom and found many who said certain drugs together would blast out the 2 remaining parasites, but the Dr. would not go forward with the treatment. Parasites are a root cause of all kinds of problems and it was not until my son was in the ER 2 times, and a psych evaluation hospital that they were finally treated. My son also did not want to take drugs, and it has been a long journey BUT, his traumatic situation (misdiagnosed as schizophrenia), has forced me to see that I also need to change.
Now, years later there is more research and findings on a thing called Methylation also genetic. I'm posting just in case someone else has run out of hope and needs a new lead. Interestingly in my son's case the reason why his genetic code is not healthy is because of pesticide residue in my husband's system. He was an applicator and farmed with pesticides from youth until his 40's. Last year my husband had some tests run using bio-testing scans and guess what, it said there were pesticides in his body over 20 years old. Now my son is avoiding the foods that his body can't process because of under methylation, and his symptoms have gotten so much better. There are supplements that are pre-methylated for this particular problem. http://www.enzymestuff.com/methylation.htm

I don't know how to help my son. He is currently sectioned under the Mental Health Act (UK) - he was given 4 days leave but taken back in after less than 24 hours- he has his own flat but says he can't cope without his friend ( who also schizophrenic). His friend was with him for the first 24 hours drinking and smoking weed- against my advice. My son suffers from a delusion that he has tapeworm cysts in his brain and is dying. He has been referred for yet another MRI scan and says he will believe the results but has already had numerous stool tests and a CT scan which showed nothing abnormal. He cannot talk about anything else than dying. He is on risperidone injections but they have made no difference. I despair for his future and he doesn't understand why I don't accept that he is dying. I am at the end of my tether and am trying to function as a "normal" person but it is really getting to me .....

I've ever written in anything like this, but maybe I'll get advice I could use. My 23 year old daughter has had high anxiety since elementary school. We noticed it was actually a problem in middle school. Family dr. put her on Fluoxetine and clonazepam, but I think she's self medicating with morphine? Others? Dr. referred her to a psych who diagnosed ADHD and said these scary thoughts of torturing people were normal. Said, "you're not DOING these things are you? Then you're perfectly normal". I don't agree with that or ADHD diagnosis. My concern is what if it's schizophrenia or bipolar. Mental illnesses are so hard to diagnose. What if it's just something she's eating, like processed foods for example? Her hands shake when she gets panic attacks or even nervous about something. She's afraid of people. Can only be with one friend at a time. Panic attacks when she's in groups. Now she's sad all the time. Her dad and I wonder if the sadness is because she doesn't know when her "street fix" for self medicating will come? I don't know what to do any more. I don't even know how to be a mom to this 23 year old any more. She still lives at home. Can't keep a job because of her fear of people so doesn't have a car. She's finally taking her Fluoxetine like she should, but always wants more clonazepam. She also asks her Dad for morphine a lot. Of course he doesn't give it to her (I dole them out cuz he's on a lot for chronic knee pain). I don't know what to do any more.

I have a friend who's 23year old son his ill. He does not want to get help in fear that they will give him medications. My friend is at the end of his rope, the authorities are not helping "until something tragic occurs. He helped his son get his head straight and get a job, which he can never keep because he always falls back in paranoia. What to do to help as a friend?