Schizophrenia and Parenting: Step In or Let Go?

Marjie,
We are going through the same thing. NAMI is really resourceful. We had to do the tough love. I highly recommend the movie A BEAUTIFUL MIND. It's a very powerful movie about schizophrenia, made a lot of sense to us, showing the mind and how they live day to day, what goes through their minds. I cried during most of the movie but it opened up my eyes. I pray for my daughter each and every day and feel very helpless not being able to help someone that doesn't want the help or feel they need it, but someday, somehow, she winds ip getting by and she will call upon us again when she feels she is in trouble.
Sad thing is our daughter took too much of her haldol and wound p swelling,

The hospital kept her for five days only to find out in the morning of day six our daughter checked herself out. If only we could keep our daughter in the hospital for longer than 5 days to get the proper treatment. She won't accept her diagnosis. How can we get her committed, being 31 years old, hippa laws and she refuses to sign s release to us? Thats why we had to let her go. We pray she comes for help before something bad happens, she is a danger to herself as she makes poor decisions. How can the hospital release her when she overdosed her medication? It's very hard as a parent with an older child.

Thank you Randye and Bonnieleckie,
I have contacted a few people trying to find out if there are any options open to me to help my daughter. I have ordered the books you suggested Randye and I have talked to a very helpful and concerned lady at NAMI. I am going to my first support group meeting this evening.
My daughter has gotten progressively worse and will not get showered or go outside but just lies on the sofa. She only answers me occasionally when I talk to her and spends most of the day either solemnly examining her hands or laughing out loud. I feel like crying (as I have done so many times in the past) but I feel as though I have to change

Thank you Randye and Bonnieleckie,
I have contacted a few people trying to find out if there are any options open to me to help my daughter. I have ordered the books you suggested Randye and I have talked to a very helpful and concerned lady at NAMI. I am going to my first support group meeting this evening.
My daughter has gotten progressively worse and will not get showered or go outside but just lies on the sofa. She only answers me occasionally when I talk to her and spends most of the day either solemnly examining her hands or laughing out loud. I feel like crying (as I have done so many times in the past) but I know that I have to find some kind of solution that works this time to help my daughter. I have been told the only way to have a say in getting my daughter to get help is to get power of attorney but a friend told me she is concerned that then I will be liable for all my daughters financial responsibilities.

Too tired to write a lot but I just wanted to say how much I can relate to all your situations... My son is back in hospital again but i'm really not happy with the care he is receiving, really feel low about everything that's going on right now - it's all just never ending & I feel like i'm going around in circles.

I am pleased to find this blog.Every day my heart aches for my son who is age 29.I became his guardian last summer when he signed papers while in the hospital.In over 5 yrs.,he's been hospitalized over 15 times.They say he is high functioning but he clearly has anosognosia.The book I Am Not Sick.I don't Need Help has been a great help. He has tried every thing he knows to persuade me to allow him to discharge from Birch Tree Communities which is the best support in Arkansas for MI.Right now therapist there are asking me to distance myself from him.While sometimes it is a relief and allows me to attend to my own life,it is very tough because he has needed so much help.The change is tough.He was a triathlete before he got sick & sixth in the nation in his age group prior to his big break.Was also an excellent swim instructor.Over a yr. ago he was able to complete 1 semester & 1 summer session but had to withdraw from the 2nd session.This summer for the 1st time he moved into apt. by himself.He had apt. with a roommate. Birch also has group homes so he has been in that setting several times.We never know what to expect.But one thing is certain & that is change. I am currently a local NAMI group facilitator.NAMI is a God send!

I also have a 30 year old that seems to hate me and her sister. And threatens me. To move out each time she gets upset. She thinks we dont care. An says mean things to us all. She can be normal in front of people. But when we get home. Im am walking on eggshells. Praying she doesnt explode. I work. And my days off are difficult. She has tooken over it seems like. I need to take classes to give me better coping skills. We have been going through this for about seven years. She attends church with me. Things have gotten alot better. She no longer cuts . herself

I also have a 30 year old that seems to hate me and her sister. And threatens me. To move out each time she gets upset. She thinks we dont care. An says mean things to us all. She can be normal in front of people. But when we get home. Im am walking on eggshells. Praying she doesnt explode. I work. And my days off are difficult. She has tooken over it seems like. I need to take classes to give me better coping skills. We have been going through this for about seven years. She attends church with me. Things have gotten alot better. She no longer cuts . herself . Thank GOD! Ive just gotten alittle run down by all this. And would like to know of there is somewhere we could both go to get counseling? Its a battle that i will never give up on. She is my daughter and i love her to life!

my son.28 year old.he is lonely.stopped taking meds year ago.up down up down left right left right.....i love him dearly.i want happiness for him.girlfriend.friends.........bipolar/schizo?

its difficult and hard to have a son with this sickness. ive been battling with him for the past 12 years or more. HE is on alanzapine but i feel that he is relapsing because today he doesnt want to see his nephnew which he adores.

FORE none of us stand alone sorry too all that have a child with mental illness . I need help knowing what to do MY 28 year old son has been battling this for over 7 years in and out of the state hospitals. the thing is that we his family mom two sisters and a much younger brother seem to be only hanging on by a thine line. he has and can be threatening ans dangerous. two him self and others often we love him deeply but i think it has came to that sad place where we need to let go and try to go on with our lives trying to put our self's back together HOW bad this sounds for us to due such a thing to some one we love and is ill please help me to start to know what to due

Schizophrenia ruined my family. I think about it everyday.

I just want to thank you for this site - this post, your blog or your web page. I feel at home. My son, 26, just moved into a shared apartment with another person - my son has a diagnosis of schizophrenia. Letting go (last June 2012) when he moved was, after reading your post, exactly as you describe, although I did not realize it.
I just want to say - I cannot wait to read more of your story - of my story - it puts words where my heart is. Thank you

At the begining of my son's mental illness I did not understand what was going on in his life. He was hitting the walls, he was closing all the windows, he always was wearing sun glasses, and so many different others things. I was working and when I came back home he was very sad. He was 26 six years old now he is 29. He started taking 1mg respidore, he started felling better. He stop taking meds. When he had a strange episode I called 911, they took him to the hospital, until he had to stay at the hospital for one week. He did not like to be there "with crazy people" and he promised to me and to the doctor to re-start his treatment. I take him to the clinic twice a month for his injection and at bedtime I give to him a pill of the same med. He has been very relaxed, but he doesn't want to go out alone. I take him out. But this is my problem how can I tell him that he has a brain disease call schizophrenia? Please help me..

What are the signs on schizprenic. I know my son is depressed. He will not take meds. He has no friends, is afraid to get a job. He is in community college and is very lonely. He has six classes left unti he receives his associates degree. He will not return next semester becuase he need to get help. Where do I get help. I live in massachusetts.

I don't have anybody around to whom i may tell the truth about my 22 y.o.son. But after i read all of this stories i know - i'm not alone. It's probably does not make my life easier, just my feelings. We all saying the same, no different. It's a sharp pain inside. Why does it happen with my child? What to do? How to survive myself?
I also have 3.5yo boys, and their father doesn't want his kids around my oldest son. And he has the right to have a peace in his own life. I'm balancing between. Love all of them, and slowly going down. Can't make a choice. Who can?
I know my oldest will not to be able live on his own. No money, no ability to keep the job, no education, always alone in our new place, new country (we have been living in usa for 7 years). We tried for a year to find the psychologist with no success. Hospital released him with no doctor and prescription for Abilify for 2 weeks, and again we are waiting for psychologist ( i can write a lot about this problem). It's a really big problem in this country. Something not connect and going on wrong. I will reading about NAMI tonight. Maybe this resource will more helpful.

Dear Randye: I want to thank you for your book "Ben Behind the Voices" and for this wonderful website. My son is currently hospitalized (for the 4th time) and was recently transferred to the state hospital. He went in the day before Thanksgiving and was there through the Christmas holidays and is still there. It tears me up inside that he has to go through all of this. As I was reading your book I was glad to hear that my family and I were not alone. Ben reminds me of my own son in some ways. Some of the stories parallelled what we have been going through. My son is still so young - 22 years old. My son has a past history of heavy marajuana use. In his late teens I thought that it was the pot smoking that was causing all of his "issues". Come to find out it was something that was more serious - a serious mental illness. I sometimes think that the diagnosis (schizophrenia) may be incorrect or maybe he has just a touch of it. I'm still in that haze of disbelief but I'm doing everything I can to educate myself and my other family members. I've recommended your "Ben" book to my family and others and have attended some local family support groups. I like your analogy of the journey as my son is just beginning his journey and I want to do everything in my power to prevent him from having to suffer needlessly. He too doesn't feel that he is sick, which seems to be a common and difficult part of the illness. I have recently had to make a hard decision regarding his care, as you did, I told him he cannot come home to live with me or his grandparents. It still hurts to say that but you have given me the courage and the hope that something positive will become of making this very tough decision. When we talk on the phone he asks if he can just stay with me until he gets on his feet. I heartbreakingly have to decline and tell him that he has to move on. I feel it's the only way for him to move forward with his life. He spent two years living with me and two years living with his grandparents not able to really function in the world. He's had a difficult time staying in school or finding/keeping a job due to lack of motivation. In and out of hospitals, IOP's (Intensive Outpatient Programs), not adhering to taking his meds. Ups and downs, good days and bad days, somewhat normal to bizzare and strange but I have come to accept these things as the new normal for my life. I'm hoping that the state can provide the programs that he desperately needs. I am advocating for his care and have been in touch with his social workers and ICMS worker. I am not giving up before the miracle!! Do you have any specific advice going forward? Thank you again and I sincerely appreciate the work you have put into forwarding our cause.

My 21yr old daughter has been suffering for the past 2 years with a bipolar schicophrenia, it started right after her boyfriend died tragically in a car accident, she was never the same. She denies she has a problem, but it went from sad grief, to depression, to now bouts of destruction, extreme disrespect, paranoia, hallucinations, delusions and having yelling matches with herself. She has no remorse for being verbally abusive and has escalated to threatening to kill me. I know it's her sickness that is controlling her but she refuses meds and turned to illegal drugs to cope. I have tried every avenue to get her treatment, but due to her age, everywhere I go they give me the same answer, she has to seek help on her own. That's the break in our system for mental health needs. The inpatient treatment centers that offer care are limited to people who have a ton of money since a 30 day stay can be about 75,000! The county offers little help if at all and only if they make the appointment and admit to their irratic, irrational unpredictable behaviors. I wish mental health didn't carry such a negative stigma,and the goverment had more resources available to low income families.

my son is also just newly diagnosed with this,, he is still in the military for now.. but they are afcourse after finishing all of the final tests sending him home and out of the military. He had been in for 7 years now.. it is so hard to see an independent strong person come down with this illness.. his is all religious type hallucinations and delusions. It frightens him sometimes, and comforts him others. He does not want to believe it is anything but religion.. I am so scared that if it comes down to him realizing anything else, it will drive him over the top. He keeps saying he isnt crazy, it is god trying to use him to bring others to god. I love him so much. And dont have a clue how to communicate with him, as i dont want to say the wrong things. He is in another state, so, I am going into this cold turkey.. I am going to contact that support group you have listed. I am so depressed about all of this,, and terribly overwhelmed.

My son is about to be kicked out of his sheltered accommodation, with nowhere to go, but with a promise that they will find him some rented accommodation in the near future, what good is that, when he is feeling scared and alone, he to is a schizophrenic , does that make him a bad person. He has been constantly been let down by so called do gooders who get educated on how to deal with said illnesses, but do not know how to relate with the core- conditions which are needed to gain the confidence which people like my son need. Where is the help? it certainly shouldn't be on the end of a needle, where by you are numbed of all feeling and walk around like a zombie. My son like many others is highly intelligent and feels like a normal human being and so with education and the right advise he could get back out there and lead a practically normal life, but where to we go to get this help? has anybody got a clue?

My son who has paranoid schizophrenia was treatment resistant. We had him on every medication possible and finally he did well with Clozapine. For 10 years he did well until he was determined to see if he could control his symptoms. He became extremely psychotic. He refuses to take the full amount of his meds and is verbally a usive. He's been kicked out of his apartment and wants to stay with me. when I try to communicate with him to discuss difficult issues he has no insight. He accuses me of terrible things. He is his own worst enemy and has isolated himself, fired his doctor, refuses help from everyone, is barely still getting housing and SSI help which may leave him homeless, and has his brother and I anxious, miserable, and unsure of what to do next. He has t done anything aggressive enough to indicate that he is a danger to himself or others so I can't have him hospitalized. I lie awake at night wondering what to do? I love him but find it hard to move on and function.

Hi,
Thanks for the info. My 20 yr old son (Ryan) was diagnosed Friday with Schizophrenia. He is currently hospitalized and I have spent the past 8 hours learning about his diagnosis. He was misdiagnosed with BP.
My ? to you:
Ryan is extremely angry that I helped get him hospitalized. He is exceptionally intelligent but has recently become delusional about this. i.e. "I am a genius--a prodigy" He is saying that he will not live with me. He is unable to self-regulate and function on his own. Any thoughts on how to handle this situation? I will be addressing the possibility of Guardianship but until that happens what can I or the hospital team do to help convince him to come home with me?
Sincerely, Sandy

My daughter will be 45 the first of March. She never had children. There is such a long story here and I don't know where to start, except to say I am 70 and she is waiting for me to pass away so she can get on with her life. She lives in a house that I once lived in but I moved about a 4 hour drive away in the next state. I was paying all the utilities and even buying her groceries until a couple of years ago. Now, I just pay for the taxes and insurance on the home. She lost her drivers liscense 5 years ago because of a DUI. She had gotten out of a couple others thinking they wouldn't show up on her driving record. She thinks she is the best bartender there ever was. I talked her into going to beauty school and that wasn't easy. I actually paid her to go. I thought she would have something to fall back onto if she couldn't get a bar job. Dawn claims she can't get a job because she doesn't have her drivers liscense. She thinks I am punishing her by not helping. Truth is she still drinks and says everybody conspires against her. Every job she has ever had the girls or women are jealous of her and she doesn't know why. The police were unfair to her and roughed her up and I didn't care or do anything about it. There is a video tape of her when she got her DUI but she refused to let the lawyer show it to me. I paid the lawyer,fines, evaluations and etc. but she wouldn't do as the lawyer told her or anyone else for that matter. Dawn, only has me and her brother, her father and all of his family or deceased. I am the oldest in my family other than a few cousins. So, there is no real support system for either of us. I don't know where to turn. My son has done all he can and he is busy putting to boys to college. Dawn doesn't listen to any advice or help he offers. What can a mother do when she knows her daughter needs mental help and she refuses to admit it or do anything about it. I don't even know who I should go to. Any coments will be appreciated.

I couldn't get through all of your comments because I'm just trying to hang on. It seems like everytime things are starting to get under control, we loose it. He looses it, we loose it. My son is 21 and I've only been going thru this for the past 4 years. There are several things I've realized in this short period, being;
We are dealing with a disease that we have no control over. If they have no control there is no way we ever will. Quit trying to control it and learn about it...everything you can learn about it.
Our children are not NORMAL. They never will be and there's not a damn thing we can do about it. Society is not set up to handle this so we need to learn how to. Bring awareness to this condition that has always been a part of society so that eventually (I mean we can hope and prey) that society will step in and understand and be a part of their/our every day lives.
Mainly what I'm trying to say is if your a parent of a child going through this, don't beat yourself up. You did nothing wrong. But it is your job to be there as long as you need to be and that is the promise you made when you decided to have children. Protect them, teach them and be there for them - nobody is promised tomorrow and by the way, aren't we so fortunate to not have to go through 1 day as they go through.

Hi,
My son has had this awful illness for 8.5 years. He has only ever wanted to harm himself and I could catch him during these times.
Recently in the past 4 months he has become angry and violent. He attacked his father, myself and 2 members of the public in the past 6 weeks.
My son is back in the mental health unit, I have to press charges for his safety and others. Im afraid of his illness, grieving for my lost son.
Ive not seen my son since he attacked me and I will not see him until he is
medication compliant.
Im trying to fix my face and get on with life but my heart is breaking.
I never in my wildest dream thought I would not be able to look after my son. Im his mum and I cant make it better..............

My daughter, 33 years old, is acting very strange. I've read on line and she seems to have the signs of paranoia and maybe schizophrenia.
She seems to be getting worse by the day....I'm praying that she doesn't get fired. devastated...refuses to see a therapist. Her father and I are at our wits end.

I am leaving this as an anonymous comment because I believe this is my son's personal health condition and his to share if he chooses to, not my choice to share. After three suicide attempts and hospitalizations I feel that normalization works the best for me and my son. It has been truly awful for me, I am dealing with that and can tell you that I dont want him burdened with the ashes of my expectations. Neither he nor I bargained for what was in store for him. He has such a good, true heart :-). I remember when he was 14 and there was a "snow storm of the century" predicted. I got up early to shovel off the driveway (single mom) and I got downstairs - there he was dressed in his too small snowpants already saying "mom, I'll call you if I need you...I got this". And he did. I was so proud of him. Our story of readjusted expectations started with a knock on the door - it was our bedroom door, my (2nd) husband and I were asleep. My son flung open the door, turned on the lights and said "What are you doing - I know you're working with them. " Disoriented, I vehemently denied it but he spilled his guts claiming that the train conducters and people walking dogs on the street had told him I was trying to get him arrested. It was a long night, but I slept easily after the talk thinking it was all some simple misunderstanding and would be resolved. Prior to that, I had only noticed a tendency for him to be a loner, a distrust of formerly trusted friends, a falling apart that seemed (sort of) nominal. That there is/was no "them" for my husband and I to even think about colluding with but that didnt make sense to him. And my beautiful, smart, son spiraled so far out of control that I fielded overy the next several weeks regular 2 am conversations on "them" with him on what train conductors had said, random phrases I had said that showed up with sinister back text on "Craig's List"...btw I now hate Craig's List. We have ups and downs. For most of you, it sounds like you have family members with this condition who live with you and who are disrupting your world and you are dealing so admirably with it. I would love to be in that situation. i, instead, have a son who only trusts my mother and will only live with her (in a house I own that I have her living in rent-free to be specific) My mother has just turned seventy and had no patience for the kids she did have, even less for the grandson she didn't ask to live with her. I need to figure out how I could get him to live with me. It is in another state (and one that figures in his paranoid delusions) so he refuses to move here. I just really want him here. I think it is a healthier environment than with my mom, with good work, good wages, and realistic expectation slong with family (just me) who loves him so much.

Hello,
I am grieving for a friend who's daughter is 25 and out of control. She is sleeping in planters and on golf courses and in the wilderness. She is dilusional about food and cutting, won't eat or drink and has went days without food or drink. She was apparently diagnosed with schizophrenia in Jan. 2013 but the doctor will not release her medical records since she would not sign release and refused medication. She carries knives with her (large butcher knives) and has an unending access to funds that her mother cannot control. I have suggested to my friend to try and get emergency guardianship and get her picked up and put on a 72 hour hold until she can get med records court ordered and get her daughter the help she needs and on daily medication. The family is devastated and it is physically, emotionally and spiritually killing the mom and brother of this young woman... She is suicidal and escaped her moms home and caught a flight to somewhere... Can my friend get emergency guardianship to try and protect her daughter from suicide or hurting someone? Please help. They live in Hawaii.

Hi Randye,
I just stumbled upon your blog and I really don't know where to begin. My reasons for writing you are compiled of ALL of the previous writings. My son is 26, highly intelligent, and is suffering from Sczicho-Affective Disorder, which he was diagnosed at the age of 16. He has lived in Hawaii, New York, New Zealand and Portland, Or, now back with me Everywhere he lives it is great for about two weeks then I wait for the other shoe to drop. Now he is supposedly studying for the GED so that he can apply to Universities in Europe, which is where he wants to go and has want to go since he was a teen ager. My son despises the USA, has 0 friends, doesn't use his cell phone except when I call him. Stays in the house all day, although he told me that he got two jobs when he was living in Portland for 3 months, whenever I mention a job, he becomes angry. He becomes angry in general easily. He doesn't go outside except to walk his dog for about 10 minutes. Other than that, he only goes outside at night, walks to the store, goes to Rave Concerts, music concerts, is a staunch Vegan, never smoked & never drank. He says he doesn't want to be open with me because I don't listen to him and because of what I did to him when he was younger. I have raised him on my own and I have only spanked him once. In two years or less when I move to the Bay area and rent out my home, I told him that he has to be ready to live his life and I will be able to visit him there. My brother and I helped him get SSI almost three years ago, so he does have some type of income to sustain him...I do attend NAMI meetings, although they don't seem to help much in the real scheme of things. My family doesn't want to hear about this anymore, although they do love my son, he doesn't want to be around them or talk to them, like I said, he talks to no one. Do you have any sound advice or perspective? He doesn't believe in therapy nor meds. Been in hospitals 5 times, the last hospital told him that he can live on his own and that he isn't depressed, but something is radically wrong with my son. Thank you so much for reading my thoughts today.