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Parents of Mentally Ill Children Have a Long and Difficult Journey

August 19, 2010 Angela McClanahan

 

Being the parent of a mentally ill child is painfully tough. Can you ever come to terms with your child's mental illness, the expenses, and facing the stigma?

I’ve long been a fan of the Rudyard Kipling poem, “If.”

If you can keep your head when all about you
are losing theirs and blaming it on you…

I can relate to this verse. I’m sure all parents of mentally ill children can. Often the greatest challenge we face is not going stark raving mad ourselves.
If you can trust yourself when all men doubt you…
If you can wait and not be tired by waiting…
Or being hated, don’t give way to hating…

Being the parent of a bipolar child has not made me popular. My child has been passed over for parties and had his own invitations declined. Other parents who only know my child by the stories they hear from their own kids are quick to label him as a bad seed. And if he’s a bad seed, surely he must come from bad parents.

If you can dream---and not make dreams your master;
If you can think---and not make thoughts your aim,
If you can meet with Triumph and Disaster
And treat those two impostors just the same...

We all have high hopes for our kids. When your child is diagnosed with a mental illness, it’s hard to come to terms with the impact of the diagnosis on those hopes. Should you continue to worry about paying for college, or just focus on getting him through high school?

If you can …watch the things you gave your life to, broken,
And stoop and build'em up with worn-out tools...

Undoubtedly, the hardest part of parenting any child is the hurt we suffer when they suffer. Our children tend to suffer more, and there are few (if any) rewards to soothe their suffering.

If you can make one heap of all your winnings
And risk it on one turn of pitch-and-toss,
And lose, and start again at your beginnings,
And never breathe a word about your loss...

I try not to think of all the prescriptions I’ve filled in the past five years. Particularly the ones I refill—at full market price—only to have the psychiatrist a day later agree they are not working and here, try this instead, and no, it’s not available as a generic. And it may not work either. But let’s hope for the best.

If neither foes nor loving friends can hurt you...

People fear what they don’t understand. Many people don’t understand mental illness. Some of them are closer than you think—friends and family members you never expected to do or say hurtful things.

helpingKipling’s words paint a disheartening portrait of the world—not unlike the world we face daily as parents. But at the end, he offers this as inspiration—if you can survive all this adversity,

Yours is the Earth and everything that's in it

Which perfectly describes those moments when we are proud of our kids…when we feel like we’re doing right by them…when we haven’t lost our temper or cried in front of them…you know, the good days.

I wish all of us more of those.

APA Reference
McClanahan, A. (2010, August 19). Parents of Mentally Ill Children Have a Long and Difficult Journey, HealthyPlace. Retrieved on 2024, May 8 from https://www.healthyplace.com/blogs/parentingchildwithmentalillness/2010/08/parents-of-mentally-ill-children-have-a-long-and-difficult-journey



Author: Angela McClanahan

In reply to by Anonymous (not verified)

Cath
July, 30 2017 at 1:54 pm

HOW did you get into my head and steal MY thoughts?!?! ? I just read your comment and am shocked that how we think and cope ? Is EXACTLY THE SAME!! Such a shame that I can only find a mother who truly gets the level of hell I feel! Unfortunately, I have to scour the internet to find information AND people who have lived experience with SMI children.

In reply to by Anonymous (not verified)

Stacey PK
December, 11 2017 at 2:32 pm

Hi Carol, My heart hurts for you. My daughter is 16 (had her when I was 37) and struggles with psychotic depression/anxiety/likely bipolar and none of the therapy/medications are working well right now. She had (I tried) the same idyllic childhood your son did. I spent a lot of time wondering if I caused this by not paying enough attention to her, not noticing her symptoms earlier, not getting along better with her dad,etc. The truth is we mom's don't cause the mental illness in our children - it really is all biochemical and just a bad throw of the genetic dice. It would be easier in a way, if it was my fault. Then I could just be like 'aha'! there is the reason. You are being a wonderful mom to your son now, and I know it takes a lot of strength. Try to lose the guilt - it will only cripple you and not help anyone else. This is not your fault. I appreciate wine too, but I also try to do things that I can focus on to distract me (a garden, crafts). It helps to have something to point to, like the perfect tomato, to be happy about. Be well - I'm working on it!

In reply to by Anonymous (not verified)

Nancy
August, 20 2019 at 10:13 pm

Thank you for your post!!! I relate! Sorry to have your company in this challenge. Never give up hope! Feels better to hear from someone with same life challenges and heartbreak! Stay strong! We loving, caring parents do the best we know how despite judgement felt from others that don't know what it is like to be in our world. We feel judged by parents that don't understand our challenge because they have a much different experience caring for their children. It is out of our control. It is in God's plan and or up to the child to comply with treatment plan to help themselves. You so badly want to fix it for them, but you can't. It is not like an ear infection that gets better with bubble gum medicine in a day like you wish! All you can do is try your best with resources available and love them. If parents are tired of dealing with their issues then the children must feel more tired? Recovery is possible! I have seen it. It is not a straight road. It has curves, bumps and uturns. My son is 28 and doing fairly well now and very helpful to me. He is my best friend. I have another child that has also struggled in a different way. It can skip a generation. Going to have another glass of wine now. Best wishes to all that struggle. Praying for all that struggle every night!

In reply to by Anonymous (not verified)

sylvia
August, 8 2020 at 8:55 am

my son had a brain tumor when he was five months old after the operation he was left with mild epilpsy learning difficulties then when he was about sixteen he had Schizophrenia
he has been in mental hospital and had been abused in there he is now damaged from all this hes angry about it we are to blame Mum Dad for putting him there he is now 38 and its been hard i have done alot of crying but we are still there for him when he needs us hes our Son and we love him i keep praying so bless you all
sylvia

Donna
September, 30 2016 at 3:43 am

Hi all. Thank you all for sharing your real thoughts and stories. I have a 12 year old with GAD, learning issues, possibly ADHD (finding out today), sensory issues, etc. My 17 year old struggles with depression and anxiety as well. I have been on anxiety meds for about 10 years now as well. I blame myself that the girls got this from me. I am also sad and discouraged that this will continue with my youngest especially for a long time, possibly her lifetime. I too have felt I wish it was all over..exhausted. Both girls are on medication and see therapists. 12 year old is started to "embellish or lie"..had DCF called this weekend saying we hit her (which is a lie). So hard because we love them so much. They get so much love and attention from us. I know a counselor will help me too. It's just so heavy sometimes. Thank you that I'm not alone. God has a reason for all this.

Wondwossen N. Mekasha
May, 4 2017 at 6:58 am

Thanks for sharing ur expirience let me tell u mine a book can be written about my life i fall and rise three times i was mentally ill when i was 18 just weeks before entering a prestigous university in the country addis ababa university in electrical engineering i joined weeks after dropped out i start medication it was painful it was difficult to accept i couldn't beleive it was real i stayed home for five years without work or education full of painful moments all friends left me my father and mother are not able to educate me in a private college i come from a poor family i waited until my elder brother graduated and get a good job then i started education and managed to graduate with good GPA it's not easy to graduate strugling with pain i felt it was a sucess quickly i started work but the work was not situable for me it was stressful i quit then i told my self what is my future if i am not able to work i gave up then i decided to commit suicide just seconds before i prayed to God then i survived again i stayed home for two years i'm an orthodox christian i usually go to church and pray one day God helped me made the impossible possible i got a work which is not stressful and co-workers who understand my situation i 'm still working

In reply to by Anonymous (not verified)

Tuesday
August, 16 2017 at 6:21 pm

Please look up iboga treatment. It's an amazing life changing, natural approach that is as close to a cure as there will ever be. My best to you.

Vern
June, 20 2017 at 3:46 am

My son is adopted right at birth. I saw him born; I held bio mom's hand when she had him, and I cut his cord. He is my baby. 10 years old now. Beautiful , smart, funny, and mentally ill. ADHD(minor diagnosis), conduct disorder, and disruptive mood dysregulation disorder. Dr says criminal mastermind in there. I too pray 100 times a day for sure.

In reply to by Anonymous (not verified)

Susan M
July, 4 2017 at 2:52 pm

I understand. My 15 year old son has bipolar and marijuana addiction. I am his adoptive mother. Most days are very very difficult. My son threatens suicide, and abuses and threatens me. My husband wasn't supportive and we ended up divorced. Now I'm a single mother in this situation.

In reply to by Anonymous (not verified)

Marie Thompson
August, 10 2017 at 12:06 pm

My grandson we have raised since he was 16 months is also bipolar and has marijuana addiction as well although he will not admit it. He has been in jsil and rehab. He has drained our bank account asking for money daily and tgreater ing us. He recently stole our laptop. For a week he has been saying it's not gone but won't produce it. We are at our wits end. Our bills are not getting paid, behind on house mortgage. We can't take much more, I love him but hate who he is. Argue daily. He is going back to counseling, but if he goes and isn't honest it won't help. I know what you are going thru. It ruins your life.

In reply to by Anonymous (not verified)

Jo Jo
September, 1 2017 at 5:29 pm

My son is 4 and he has just been diagnosed with Adhd, DMDD, bipolar and high chance of schizophrenia. It has gotten so hard and doesn't help the fact that I also have my own mental illness. No one seems to understand what I am going through and think my son is just a bad kid. He is the sweetest boy every he just can't control his feelings sometimes and outburst.

CSBK
January, 16 2018 at 4:37 am

I want to share my experience with DMDD and how after almost 8 years, we found help. (He was also adopted from birth)
Our lives, and the life of my daugher, centered around my son's explosions, which began in infancy. He often had several a day, and there was never a day without at least one. We didn't go places or do things that other families did, because normal activities were simply impossible. After almost 8 years of this, I hardly felt human.
We had tried every method we could find. We tried therapists and a well known children's center and got a diagnosis of ODD, but the diagnosis didn't help. We were getting frightened that his behavior would be even more difficult to manage as he got older and stronger, and had no idea what to do.
When our son was almost 8, we became worried about his progress as school. It was becoming clear that he was not able to focus or express himself as well as his peers. This lead to a neuropsych evaluation, and we finally had a useful diagnosis: DMDD, ADHD, and some processing disorders. Stumbling onto these diagnoses seemed miraculous. It gave us names for his issues, and a clear path to follow.
1: We started seeing a psychiatrist. She prescribed Guanfacine, a blood pressure medication, instead of going directly to ADHD meds. Just 1.5 mgs was enough to keep him from bouncing off the walls without making him a zombie. He still had plenty of energy, but his mood was awful, and nights were spend raging and smashing things while we held his door shut. We added a tiny bit of Prozac (just 4mg), and after a week, we had an entire day without an explosion. Then we had another, and another.
2: We also worked with a behaviorist and learned methods for dealing with this kind of extreme behavior. The methods we had tried before may work well for children with ordinary tantrums, but for someone with a mood disorder, they had no effect.
It's been a month now, and he's a different kid. He's had a few tantrums, but we know how to manage them and they are rare and for reasons we can understand. They are very different from explosions. He's clearly relieved that his life is happier, and we still can't believe the change.

In reply to by Anonymous (not verified)

diana
February, 1 2018 at 4:32 pm

I feel your frustration and your joy. It’s so heart breaking to watch your child rage for no reason and then come back to you in the blink of an eye. Just know that your not alone as much as it feels that way at times. Stay the course and keep trying new things as things change.

Debra Crotsley
May, 16 2018 at 1:57 pm

Here, here Angela!

The Truth
August, 27 2018 at 8:33 am

They sure do unfortunately.

Iritated
September, 8 2019 at 12:10 pm

I was looking at these post and they are from years ago. I am a single parent and my kid is an only child . It’s 2019 and I’ve been dealing with my now 21 yr old for years with her being defiant, rude, disrespectful, and down right distructive. I’m at my end and can’t deal with her anymore. I have been looking for health for years and always told that it’s her choice to get help. She has been inhaling cans for years, one minute she’s “normal” then the next she’s back on pills , marijuana.she doesn’t want medication and so I’ve tried over the counter natural things and she still refuses to take it. We’ve gone to counseling, therapist, at least 3 times in a mental ward with police contact and here we are still doing the same thing. I reach out for help and they say , she has to want to get help and of course she doesn’t think there’s a problem. I can’t take it!!!!! I can’t continue to live my life this way. I have asked her to leave several times and sometimes she says fine and she leaves for a few hours and then she comes back . I don’t like to not her back in because I don’t want her to cause a scene in front of neighbors. I have thought about going back to couseling alone because I don’t know what to do other than put her out, get a restraining order and just wash my hands of her.

Theia
May, 14 2021 at 8:42 am

Don't know if you are still reading this in 2021, but can totally relate as have a similar scenario going on, with a slightly older adult child. Hope you have found some help or solutions. There do not seem to be any from where I am currently standing. My own health & wellbeing are going downhill & I have to care for several dependents with an adult dependent child making life a misery for the family. I try to help & would spend every penny if something could help her. But she refuses & calling services escalates things to worse. Everyone blames parents, upbringing , trauma etc but there seems no reason in some cases, maybe a biochemical imbalance or something. I cannot bring myself to put her out of the home as she is not streetwise and would not last long - I would not put out my child with a physical illness so mental illness I treat the same. It is not the same though, is it? Thoughts & prayers to all in this type of situation.

Diana
May, 31 2021 at 10:56 am

Single parent of only child with chronic emo/physical issues since toddler. She's 23 now and very very stuck in every way. Feeling hopeless, l have my own emo/physical issues for a long time and exhausted. Helps a bit to know l am not alone and posting for others to know the same. Sending love to anyone who reads this. ❤️?

G Battle
July, 6 2021 at 8:17 pm

I am a single parent of one child with mental health issues. We have been to therapy and he has been in therapy since 2017. He has gotten better but still has anger issues. When he is calm we have great talks but when he gets angry I can't calm him down so I end up feeling like a child being scorned because I just don't say anything back. He was doing really well then he stopped taking the meds because he said they didn't help but they did help. His anger was under control but now it is on 1,000. He is 17 and is really bombarded with being an adult but I tell him not to focus on that so much but try to focus on one thing at a time like learning how to drive. Sometimes he is motivated but most of the time he isn't. His dad works all day and hardly spends anytime with him and I feel as if he is taking all of what he is feeling about his father out on me. I am at a lost on what I should do. He has many marks on his arm from cutting himself and now it has gotten to the point that he threatens to harm himself when he gets angry as a way of controlling the conversation. I am so lost and just want to give up. I've put my life on hold just so I can be emotionally available for him but I have no one whom I can vent to.

Vega
July, 15 2021 at 10:14 am

I know this is an old post, but I can’t find any help for my almost 15 year old daughter. She has been diagnosed with dmdd at age 9, but also has other issues. I don’t want to go into details too much, but with the school closure, she has gotten worse. She hasn’t done any online school, stopped taking care of herself, doesn’t see anybody. She has no friends or siblings. The school doesn’t want to help and say it’s a home problem and she needs counseling. She doesn’t want to go for counseling and because she’s 14 no doctor will see ne alone regarding her issues. No one will come to our home to help us. I need to send her to live elsewhere but even a lawyer can’t help me with that. I can’t afford a therapeutic boarding school and school doesn’t want to send her. My life is very difficult. My daughter doesn’t think there is anything wrong with her, never wanted to take meds. We tried countless supplements that we sneaked into food. I just need someone to come and help me. My daughter hates me and yet she is super attached to me and dependent upon me. She is very smart in. A Way, and in other ways she’s like. 2 year old and won’t do anything for herself. She screams snd cries, won’t let me comfort her, is stuck on ideas, very rude, destructive, manipulative, sad, depressed, etc.

Laura
September, 7 2021 at 7:44 pm

Did you get help for your daughter?? I’m in the same situation with my 12 year old daughter.. it’s very sad and difficult..

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