Living Without
Depression and Manic Depression:
A Guide To Maintaining Mood Stability
online conference transcript
Mary Ellen Copeland, our guest
tonight, experienced episodes of
severe mania and
depression for most of her
life. She interviewed numerous people to find out how people who experience psychiatric
symptoms relieve these symptoms and get on with their lives.
David
Roberts is the
HealthyPlace.com moderator.
The people in green are audience members.
David: Good
Evening. I'm David Roberts, the moderator for tonight's conference. I want to
welcome everyone to
HealthyPlace.com. Our topic tonight is "Living Without Depression
and Manic Depression: A Guide To Maintaining Mood Stability". Our
guest is author and researcher, Mary Ellen Copeland. Besides writing about it,
Mary Ellen experienced episodes of severe mania and depression for most of her
life. She underwent numerous hospitalizations and medication trials that
weren't helpful.
For the last ten years, or so, she's been
studying how people who experience psychiatric symptoms, relieve these symptoms
and get on with their lives. She's incorporated those self-help methods into
her own life and tonight she's here to share with us the tools to maintaining
mood stability. You can read more about Mary Ellen Copeland here.
Good Evening, Mary Ellen, and welcome to
HealthyPlace.com. We
appreciate you being our guest tonight. Before we get into some of the
self-help methods, I mentioned that you tried psychiatric medications, antidepressants, along with the
hospitalizations and therapy. Why, in your estimation, where those things not
as effective or helpful as I'm sure you hoped they would be?
Mary Ellen Copeland: It's really nice to be here,
David!
I think the therapies that were suggested by
the doctors were not helpful because my life was so chaotic. I had no idea how
to take care of myself. I sabotaged my own efforts at wellness.
David: Can
you elaborate on that a bit?
Mary Ellen Copeland: Yes, I would be glad too. I didn't get
enough rest. I ate lots of junk food. I didn't exercise. I had no idea how to
relax. I didn't know how to say no to the requests of others. I sometimes
abused substances. You can't get well when you live like that.
David: How
many years have you suffered with
mania
and
depression?
Mary Ellen Copeland: I think most of my life. I remember
being very depressed for long periods of time when I was a child. I wish I had
gotten help then. It wasn't until I was in my thirties that I finally reached
out for help.
David: And
why did it take so long?
Mary Ellen Copeland: I thought I could control it myself.
But I was never able to. I didn't know how. That's why it has become so
important to me to reach out to others and find out how they have helped
themselves relieve these horrible symptoms.
David: I'm
assuming, since you titled your book A Guide To Maintaining
Mood Stability, that the goal here isn't really to cure depression and
manic depression (bipolar disorder), but to really stabilize your moods, so
that you don't experience these huge mood swings. Is that correct?
Mary Ellen Copeland: That's correct. I work on managing my
moods every day. But now I know a lot of ways to help myself feel better, so
the moods no longer overwhelm me and my life. I still have symptoms, but they
are much milder and of shorter duration. I used to spend months in the
hospital, but now I have either a bad day, or several days, or sometimes just a
bad afternoon.
David: That
is a huge improvement.
I want to mention here that Mary Ellen is not a
medical doctor, but she is a therapist, and now is involved primarily in
educating others about mental health. The information she has to share with us
tonight is based on interviews she did with others and her own
experiences.
Please tell us, Mary Ellen, who you interviewed
and what they were suffering with?
Mary Ellen Copeland: I have, in the last twelve years
interviewed thousands of people from all over the country, who experience
psychiatric symptoms or mental health problems.
David: And
what have you found out in terms of self-help methods that worked?
Mary Ellen Copeland: I have found many things that
are helpful to people. I have found so many things, that now I have ten books
based on my findings. One of the first things I learned for myself, was that I,
myself, had to do things that I enjoy. I had forgotten how to play and how to
have a good time. So I began sewing, playing the piano, painting pictures,
getting together with friends, and it made a huge difference in how I felt. I
learned about the effects of diet, light and exercise on my moods and how to
use them as ways to get my moods back under control. I could go on and on about
this. There is so much to tell.
David: So
one thing is, do things you enjoy doing. Put some joy in your life. What about
diet?
Mary Ellen Copeland: I have found that junk food (food that
is highly processed or loaded with sugar or fat) makes me feel much worse. If
my diet focuses on healthy foods, like fresh vegetables, fruit, whole grain
foods, some chicken and fish, I do much better. I have found that there are
certain foods that make me feel worse including foods that I think should be
OK. I have learned a lot through trial and error. Working with a good
nutritionist and educating myself through self help books and internet options.
My diet is much different now than it was just a few years ago.
David: We
will continue on with more of these self-help methods. But we have a lot of
audience questions, Mary Ellen. So let's address some of those:
BreezeeBC:
Why do I still have manic-depressive episodes, even though I am on
medication?
Mary Ellen Copeland: Medications are never the whole
answer. Take a look at your life. Are you spending time with people who treat
you well? Do you eat healthy foods? Do you know how to relax? Do you take good
care of yourself? Take a look at your lifestyle, and make changes where you
need to.
dhill: I
have been informed, by many sources, that
ADD/ADHD, depression,
etc. are caused by beta-carbolines created in our systems by the poisons in the
prepared food that we eat. I have even been told that my son's
anxiety and depression are not a psychological disorder,
but results of these poisons. Can you comment on this, please?
Mary Ellen Copeland: I suggest you learn a lot more about
this, by checking out websites and books that deal with healthy diet. Then
decide what feels right to you. You may notice that your son feels worse when
he eats certain foods. That will give you good clues about what is really going
on.
scooby:
What part of my depression is biochemical, and thus can yield to medication
therapy. Furthermore, what part is going to yield to your type of therapy? Do I
have to be in two ports to find out where my ship is going to arrive and
when?
Mary Ellen Copeland: I think you should do everything you
can to take good care of yourself. Then, if you still have symptoms that are
hard for you to manage, you can use medications, if you choose to. It is
important to remember that medications are just one tool to use to maintain
mood stability. You will find many other things that are helpful to you as
well.
David: One
of the other tools you mentioned is light. How is that helpful? And what
kind of light are you referring to?
Mary Ellen Copeland: Many people notice that they get more
and more depressed when the days get shorter in the fall or when there is a
series of cloudy days. This is referred to as
seasonal affective disorder.
They may also notice it when they spend a lot of time indoors. Sunlight helps
relieve depression for many people. Getting outdoors, even on cloudy days, can
help you feel better.
David: Here
are some more questions:
buttercup:
Are you saying medications are not always the way to go?
Mary Ellen Copeland: I am saying that there are choices to
be made. I think it is very important not to expect medications to take care of
problems in your life that need to be addressed in other ways, such as: taking
good care of yourself and spending time with nice people. Many people find that
when they have become very good at taking care of themselves, they need less
medications, or no longer need them. But it takes time to learn the skills
needed, to take really good care of yourself. It is important not to stop your
medications but, first, to work on your wellness.
David: From
the questions coming in, one of the things I'm finding is that many people,
whether it's because their doctors have led them to believe this or not, think
medications alone will be the cure. And they are disappointed, now that they've
tried them, to find out they are not the cure-all.
Mary Ellen Copeland: I found out the same thing.
Medications cannot fix an unhealthy lifestyle. And I found the side-effects of
many of the medications, like extreme weight gain, lethargy, and lack of sex
drive, to be intolerable.
specie55:
Have you had any in-depth therapy to better understand the origins of your
depression
symptoms?
Mary Ellen Copeland: I have been in therapy with a
wonderful woman therapist for many years. She helps me sort out current
problems in my life. We have also worked together on issues related to trauma
when I was a child. I think these traumatic events were a key factor in my mood
instability. Current research is supporting the link between traumatic
experiences and psychiatric symptoms.
David: I
noticed that several of your books are geared towards women. Is that because
you are a woman, or is it something else?
Mary Ellen Copeland: The book I wrote with Maxine Harris,
Healing from
Abuse. This is the only book I have written that is for women. I do not
feel qualified to write a book on that topic for men. However, I do feel that
many of the ideas in that book will be useful to men. It is based on a research
project with women only.
David: You
also mentioned exercise, as a self-help tool. And I know that some
people may wince at that. How has that helped you, and what kind of exercise
are you referring to?
Mary Ellen Copeland: Any kind of exercise is helpful.
Movement of any sort, even walking up and down the stairs or doing simple
stretching will help. Depression gets worse if you just sit around, and it gets
much worse if you sleep too much. It may be very hard to exercise and you have
to push yourself to do it. Do some kind of exercise you enjoy.
Joelle: What
are the first steps to take, if one is at the place of a "no exercise,
junk food, no relaxation experience" type lifestyle?
Mary Ellen Copeland: I was working with a group of people
who developed a really good planning and action process for restoring wellness.
It is called a Wellness Recovery Action Plan. I have written about it in
several of my books and it has become popular across the country. I developed
such a plan for myself and use it all the time. It has made a huge difference
in my life.
David: From
all the interviews you did, can someone achieve mood stability without a
healthy diet, exercise, light, etc.?
Mary Ellen Copeland: I haven't met anyone yet.
photogirl624:
My son has just been diagnosed Bipolar at age thirteen after being labeled
and treated for ADHD his whole life. What are your thoughts on
diagnosing children with Bipolar Disorder and the
controversies that surround that?
Mary Ellen Copeland: I do not believe in diagnosing
children. I believe it can be a stigma that keeps them from doing the things
they want to do with their lives and it changes people's expectation of them. I
believe we should work with our children, to help them learn how to relieve
symptoms that are troubling to them and others, and leave labels out of it. I
know this is often not a popular view.
jeckylhyde:
I have been suffering with Bipolar Disorder all my life, but was diagnosed in
1986. After my second big crash, my therapist suggested that I buy your book
The Depression
Workbook. I was skeptical, but reluctantly picked it up. When I got to
certain sections, I got even more depressed because I couldn't relate to so
much of it. Especially the support sections. I have no family and only a few
close friends scattered across the States. How do I build a support system
without scaring off any new friends?
Mary Ellen Copeland: Building a support system is very
important. You deserve to have people in your life who treat you well and
support you through hard times. I have learned from others, that the best way
to do this, is by joining a
support
group. Find one that feels right to you, and attend.
Another thing you can do, is join groups in the
community that do things that you find interesting to meet good people who
might become friends. Another good way to meet possible friends is to
volunteer.
I have just written a whole book on this. It is
called The
Loneliness Workbook. It is a big problem for many people. You are not
alone.
David: Here
are a few audience comments on what's been said tonight:
recov10: I
am not familiar with your new book, however, The Depression Workbook, has
helped me for many years. It is a source right at my fingertips, and I thank
you for helping me understand so much more about bipolar disorder, manic
depression.
rick1:
Mary, you know it's not about foods. It is really about tenseness.
Helen: Mary
Ellen, I really appreciate your self-help books. I strongly believe that there
are many things we can do to help manage our moods, and I think that often
people with mental health disorders don't hear this, so they feel helpless and
hopeless because of the disorder. So thanks for sharing what helps.
Reb: Both
my mother and I have been diagnosed with Bipolar Disorder. Me, since 1971, and
I agree with everything you mention. My mother is 88 now and is a convalescent.
Her doctors do not keep her on
medications for Bipolar and she is doing the best I ever
seen.
Alley2: The
Doctor has me on so much medication, but it doesn't really work. Instead, it
just drugs me up. Furthermore, when I feel I need counseling, I don't get it,
and I have to practically beg for it.
Sandra: I
have been on
Prozac for ten
years, and find that I just as soon stay in my apartment rather than go out.
Some days, not often, I need to get out but other days I get so down and want
to stay in.
scooby:
Isn't it wonderful to see people as warm, humorous, wacky rather than Axis
I=Axis II=...I like you already :o)
David: Many
of the things you referred to tonight, a healthy diet, exercise, even light,
have to do with metabolism. Is that a key to maintaining mood stability ...
speeding up your metabolism in a healthy way?
Mary Ellen Copeland: I think speeding up your metabolism in
a healthy way, when you are starting to feel depressed, really works. I also
have found techniques to slow me down when I am experiencing early warning
signs of mania. It works both ways, and through consistent trial and error.
Each person can find what works best for them in their life.
David: And
we really haven't talked about mania (manic depression, bipolar disorder) too
much yet. What self-help tools have you found to be effective for curtailing or
containing the manic episodes?
Mary Ellen Copeland: The tool I use most to curtail mania
is deep breathing relaxation exercises. When I realize I am starting to get
really speeded up, I take a break and do one of these exercises. I have some of
them on tape. Others, I have memorized. Sometimes I will spend a whole day
involved in a very quiet activity with the radio, TV and music off, just to
cool myself down and avoid mania. I used to have severe mania but have not had
it in many years.
gremmy: Has
it become more common for people to be put on more that one mood stabilizer? I
feel like my options are running out. I'm a rapid cycler. My doctor just put me
on another mood stabilizer and that makes two now.
Mary Ellen Copeland:Many people are on more than one
medication. I am not an expert on medication. I am an expert on self-help. I
have found that I can best manage my own moods by using many different
self-help tools. I am allergic to most medications, so that has not been an
option for me. And I manage my moods very well these days. I have been able to
work, and do the things I want to do with my life. I have recently remarried
and I am enjoying a wonderful relationship. This is something I couldn't do in
the past.
dekam20: Do
you believe that people with mental health problems are at high risk of
abusing drugs and
alcohol?
Mary Ellen Copeland: I believe they are. Mental health
problems are very painful. Alcohol and other substances, will make you feel
better at first. They relive the pain, but then, it is so easy to become
dependent on them. They often cause depression and other severe side-effects. I
believe using these substances are not worth it.
Joelle: Do
you have suggestions for
networking with other manic depressive people who have
worked through lifestyle changes and no longer take medication (or take a lower
dose than medically recommended)?
Mary Ellen Copeland:Being in touch with people through
internet groups and groups in your community are very good ways. A few ways to
connect with a group in your community is to call your county mental health
department, a local psychiatric hospital, or look for therapists who work with
depression and manic depression. They may be able to refer you to a group.
Please call around.
David: We
now have hosted support groups on our site, including
Bipolar
Disorder and Depression
support groups. We are receiving a lot of very positive feedback. Here are the
details and the
schedule for all support groups.
And, if you have a topic or a guest that you'd
like to see appear for a conference here at
HealthyPlace.com, drop me
a line at info@healthyplace.com and
put the words "conference idea" in the subject header. We get
a lot of our guests from visitor suggestions.
We are looking for journalers in the
HealthyPlace.com
Bipolar and
Depression
Communities to keep online diaries of their experiences. We are especially
looking for some men (but, of course, women are welcome too). If you are
interested in doing that, here is the
signup link: You can read these bipolar and depression
journals and post your comments on the journaler's bulletin boards.
PennyP: I
am struggling with depression. Medications prescribed have no benefit. What can
you suggest? I am upset with my therapist after 5+ years. She is recently
writing my prescriptions. I don't trust her anymore, but I really feel lost
without her. ANY ADVISE?
Mary Ellen Copeland: I suggest you develop for yourself a
Wellness Recovery
Action Plan. It involves:
- Discovering the things you need to do for
yourself every day to keep yourself feeling well;
- Which triggers and early warning signs to watch
for;
- What to do when these things come up, to help
yourself feel better;
- How to know when things are getting really bad
and what to do to help yourself then; and
- A crisis plan that tells others how they can
help you, when your symptoms are very severe.
It is the best way I know to manage. And many
people are doing this.
lithless:
What sort of diet should a person with manic depression, bipolar disorder
be on? Should caffeine intake be limited or totally taken out of the
diet?
Mary Ellen Copeland: I think each person needs to find out
for themselves, what foods make them feel better and what foods to avoid. For
instance, I have found that dairy foods make me feel worse. But many people
find them to be helpful. Most people say that sugar makes them feel much
worse.
I suggest a diet that consists of at least
five servings a day of vegetables and fruit, six or seven servings of whole
grain foods (i.e. cereal, bread or pasta) along with a bit of chicken or fish.
That's what I try to do, but it is hard sometimes. Also avoid caffeine as much
as possible. It causes anxiety.
PoohBearHugz:
What are your thought's on electric shock therapy (ECT)?
Mary Ellen Copeland: If you are considering electric shock
therapy, learn all you can about it before you consent. I personally do not
want it. I think there are many simple, safe, and effective ways to relieve
symptoms without resorting to this treatment.
David: By
the way, we are arranging a chat conference on ECT in October. We are going to
have some people on, who have undergone ECT to talk about their experiences.
One was not positive, the other is very happy with the result. So stay tuned
for that.
scooby: If
you could imagine a pie, and divide that pie into pieces, I wonder what size,
and thus importance, you would place medication, exercise, diet, support
groups, therapy as pieces? Is it okay to take one piece and the next in excess?
Just playing with your concepts in my thinker-ticker.
Mary Ellen Copeland: I think this is the kind of thing you
have to sort out for yourself. It is different for each of us. However, I
personally believe in working with the less invasive kinds of remedies as much
as possible. Figure out what works for you, and then do it.
David:
Here's the link to the HealthyPlace.com Depression Community and the
Bipolar
Community. Click on the links to sign up for the mail list at the top of
the pages.
For Mary Ellen's website at HealthyPlace.com
click here or go to
www.mentalhealthrecovery.com
.You can view and purchase Mary Ellen Copeland's
books about dealing
with different aspects of depression and manic depression.
Mary Ellen, thank you for coming tonight and
being our guest. It was very enlightening and informative.
Mary Ellen Copeland: It has been a pleasure to be here.
Thanks for inviting me.
David: And
thank you to everyone in the audience for coming and participating.
Disclaimer: We are not recommending or
endorsing any of the suggestions of our guest. In fact, we strongly encourage
you to talk over any therapies, remedies or suggestions with your doctor BEFORE
you implement them or make any changes in your treatment.
We hold topical mental health chat conferences
every Wed. and Thurs. nights. The schedule, and transcripts from previous
chats, are
here.
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